Noki4

  • Hi,

    I had a rheumatologist once tell me about what she called the, “Mediterranean diet” because of my Rheumatoid Arthritis.
    She said to eat foods like fish, fruits, vegetables, whole grains and use olive oil and that these foods help lower inflammation and can help us have less joint pain and morning stiffness. I have never strictly followed…[Read more]

  • Hi, pca3055,

    I am sorry to hear that you are having these issues. I have never had a fusion however I wanted to reply to give you support.

    May I ask when you had your fusion and have you spoken to the surgeon or your primary care about this pain.
    It does kind of think you may have a nerve compressed. I wish you the best of luck.

    Take care
    Noki4

  • Hi, I am so sorry to hear the testing increased your pain levels. I do not have CRPS however I can share that testing for my different disease/conditions has in the past made my pain levels increase from a day or so to a week or more.
    It is so hard when we need to have these tests done in order to form a treatment plan and the tests cause more…[Read more]

  • Hi Mdmc,

    For me having an RA flair can last any where from a day of increased pain to a week or more of additional pain. It is hard never knowing how long a flair may last and how much will the day to day pain increase.

    Take care
    Noki4

  • Hi Saniya,

    My youngest daughter started grinding her teeth as a teenager. It was loud enough that I could hear the grinding from my bedroom that was across the hall from her’s. I took her to see her dentist and he recommended a custom fit mouth guard. By custom fit I mean they took impressions of her mouth and then the mouth guard was made to fit…[Read more]

  • Hi Saniya,

    My youngest daughter started grinding her teeth as a teenager. It was loud enough that I could the grinding from my bedroom that was across the hall from her’s. I took her to see her dentist and he recommended a custom fit mouth guard. By custom fit I mean they took impressions of her mouth and then the mouth guard was made to fit…[Read more]

  • Hi Willowwisp,

    Welcome to family at TPC. I see that TPC YaYa has already told you about the great ways to get and give support using the chats and phone support group.
    I have to share that the phone support group is like talking to old friends, it is so relaxed and I love how it is open discussion. We just get on there and share and support and…[Read more]

  • Hi Ruthie,

    I don’t have the whole body itching from the patches but I do get the itching around the edges of the patches from time to time. One thing that has helped me for the itching around my patches is to clean the spot with an adhesive remover to make sure I get all the old adhesive off. Now with that being said you have to make sure you…[Read more]

  • DaleAdams,

    I am so sorry to read that you have not been fully diagnosed yet. It can be so frustrating trying to deal with the unknown. What medications may or may not help, what therapies may or may not help. I do hope that your healthcare providers are helpful in getting the diagnoses so you can begin to work on a pain toolbox that will carry…[Read more]

  • Oh to be in the 70’s would be great. We keep flip flopping between temperatures and my chronic pain body does not like it.
    It really would be better if it would just get cold here and stay cold. Of course I would prefer it get warm and stay warm but I live in the North so we have cold winters.

    Quieter is good as long as you do not lose your good…[Read more]

  • Hello Fortunateone,

    It appears you had a long year. I don’t know if it helps to hear but I have the diagnosis of chronic muscle strain/spasms in my chest, rib and shoulder areas. They tell me it stems from the degenerative joint disease that I have in my neck and back.

    That is one of the long list of things that have gone wrong with my body. I…[Read more]

  • Hi Sarah4108,

    Welcome to TPC. So sorry to hear of all the issues you are dealing with. I totally understand the degenerative disc issue. Mine started when I was 24 years old and I am now 52. It has been a long journey but I am still moving forward.
    I feel staying positive or has positive as possible helps with the recovery and daily living with…[Read more]

  • Hi Ynevar,

    I have Ankylosing spondylitis and it is sad that your insurance seems to disregard the facts that you do not have to be HLA-B27 positive to have AS. A majority of the people with this marker never contract ankylosing spondylitis.

    I understand that our healthcare providers are busy and backlogged but that is no excuse to not fight our…[Read more]

  • Hi William,

    Thank you for the comments. I do totally agree that people living with pain should not have to fear losing the pain treatments that allow them to have some normalcy in their lives. However that is […]

  • We all have to keep fighting the good fight. We need to hold the media organizations to telling the truth not just printing numbers that they get from a self-appointed expert. We need to keep the media honest and […]

  • Hi Mdmc,

    Welcome to the TPC family. I will start out admitting that I too have a love of chocolate and my other love is for Mountain Dew. Not a healthy combination but it gets me through the tough pain days.

    I live with rheumatoid and osteoarthritis and a few more issues. I totally understand wanting to keep moving to keep the muscles strong. If…[Read more]

  • Hi Bd,

    After you and I talked in the chat room I got to thinking about how I was worried you were giving up on life. I came to the conclusion that we all need to think about our next steps in life, the who, the what, the when and the where.
    It just makes good sense to at least talk about it. Nothing has to happen in the here and now but at least…[Read more]

  • Hi Ynevar,

    Those are all really good points you made. It boggles the mind that some healthcare professionals fail to realize that patients live in their bodies so generally we can tell when something is not right.

    Noki4

  • Hi William,

    I shared a post to you and two others on the Welcome page but I wanted to share here with you also.
    I want to welcome you and share with you that the support I have gotten here at The Pain Community is wonderful. The discussion boards are not real active right now but their Facebook page is, here is the link;…[Read more]

  • Hello William, EmilySpeaks and KSouth,

    I am sorry it has taken me so long to welcome you to the community. I have been dealing with my pain issues, you know how it is.

    I want to welcome you and share with you that the support I have gotten here at The Pain Community is wonderful. The discussion boards are not real active right now but their…[Read more]

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