May 13, 2019 at 10:02 am #426426
I would like to know is there are other people dealing with this terrible condition I have lost so much because of this and would like to speak about it and maybe find better ways to deal with my pain or give tips on what works for me and how I am able to still be working and so on
May 19, 2019 at 8:28 pm #434673
Hi Ray Ray,
I live with ankylosing spondylitis. One thing that my doctor has always insisted on is that I keep as active as I can because it can help with the pain. He is also always reminding me to pay attention to my posture.
My best to you and I look forward to speaking with you.
May 20, 2019 at 8:32 am #434676
Thank you for your response , it is really nice to speak to someone with A.S it is not a common thing so finding some one else is always a blessing for me.
My Doctor is advising the same, if i may ask how long have you been living with A.S , what medications do you feel have helped the most.
And the flair ups how do you keep them under control, I am struggling with that , the pain is always a given just the level that differs from day to day, my biggest struggle is the flair ups.
But it is a bit confusing because I have been diagnosed with Fibromaligia as well, so I dont really know when what is acting up only I can feel the pain is building and building then it just hits me out of nowhere .
I have been self injecting with Voltaren some times it helps but not always, any tried and tested advise you can give me .
May 20, 2019 at 11:07 am #434677
I was diagnosed about 12 years ago with ankylosing spondylitis. My journey started out with degenerative joint disease and as damage was done through the DJD and osteoarthritis and a few other diseases & conditions I received the ankylosing spondylitis diagnosis.
The exercise is what I have found helps the most to ease the pain and help me maintain flexibility and to keep the flairs at bay. Of course there are times no matter what I do the flairs hit. When the flares hit I use heat and ice and nonsteroidal anti-inflammatory drugs (NSAIDs) but I have to be careful using the NSAIDS because they can cause stomach issues.
For me it is doing whatever I can to keep the inflammation, pain and stiffness to a point I can tolerate it and that is where the ice, heat, and exercise come in to play. I have found soft yoga to be a big key in keeping the stiffness low.
Due to my other diseases and conditions I am on several medications but have found Meloxicam (Mobic) to help a great deal.
I totally understand about trying to figure out if it the fibro or the ankylosing spondylitis. When you have multiple illness or conditions it makes it hard to know which one is acting up and causing the increase of pain.
My best to you,
May 20, 2019 at 1:06 pm #434678
Thank you I appreciate it. I will definitely consider what you are saying I must admit my exercise is not what it should be. I just hate all these medications I can’t help but thank no sometimes the damage they doing but I guess its the lesser of two evils.
Best regards thank you for the help I’m still learning to deal with it so I appreciate ur input
May 22, 2019 at 1:39 pm #434699
Hello Ray Ray,
We are glad to see you found Noki4 to talk too about ankylosing spondilytis. We would also like to let you know that we have a couple other ways to interact with others who understand the journey of pain.
We have live hosted chats here on the website every Monday-Wednesday-Friday at 11:00am ET in the TPC Group Chat Room.
We also have support calls every Tuesday of the month. Our next call will be on Tuesday May 28th at 7pm ET, 6pm CT, 5pm MT and 4pm PT. You do not have to register and you can share as little or as much as you feel comfortable. You are also welcome to come on the calls and just listen if you would like.
Call in number: 712-775-7031 Passcode: 491-268-096 and press the # key.
Here is a link that has the schedule and info for you.
If I can answer any questions please let me know here or you can email, firstname.lastname@example.org
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