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Noki4 replied to the topic Hello! in the forum Welcome to The Pain Community 4 years, 11 months ago
Kelly65,
I am sorry to hear all of this. Living with pain is hard and sometimes those around us don’t understand. Feeling isolated is one of the big things that we live with on our journey of pain.
I will be here for you all that I can if you like.
Gentle hugs
Noki4 -
Noki4 replied to the topic New, desperate in the forum Welcome to The Pain Community 4 years, 11 months ago
Clementine,
Can you maybe go see a primary care doctor, that can maybe order a group of tests to find the answer that you need. I do hope you are able to find the help that you need.
Noki4
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Noki4 replied to the topic Struggling to adapt in the forum Welcome to The Pain Community 4 years, 11 months ago
Hi,
Living with chronic pain and illness is hard, it is lonely and so much more. I started my pain journey when I was 24 years old, it took 3 years to get the right diagnosis, so don’t give up on getting to the right dx.Pain changes our lives and sometimes the people around us. The forums here on The Pain Community website is good place to talk…[Read more]
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Micke Brown, BSN, RN wrote a new post 5 years ago
Facing surgery is daunting for anyone. What may be considered simple by some is nerve racking none the less. As a new experience, an operation comes with fears of both the known and the unknown. As a nurse […]
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Micke Brown, BSN, RN wrote a new post 5 years ago
Feeling alone, sad, and lost without a sense of direction is not an unfamiliar experience for anyone. These feelings (even when surrounded by family, friends, co-workers and others) are not uncommon when living […]
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Noki4 commented on the post, Opioid Impact Series: Something Happened That Day! 5 years, 4 months ago
DavidM, I am sorry you also suffer. I read this blog and it made me so angry and then so sad. I too live with pain and many of the same issues the writer of this blog and you have. It isn’t right the way we are […]
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Micke Brown, BSN, RN wrote a new post 5 years, 4 months ago
TPC feels one of our responsibilities to the pain community is to keep up to date on what is being used for pain relief and provide the best information available.Learning that there are ongoing conversations on […]
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Noki4 replied to the topic New Member? in the forum Welcome to The Pain Community 5 years, 4 months ago
Hi,
Welcome to The Pain Community discussion forums. First let me say you are not alone. We do understand a life of chronic pain and how lonely it is. I was 24 when my pain journey started and that was a long time ago however I know exactly what you are saying. I was a young mother of 3 kids when my pain started. It is hard to be a caregiver for…[Read more]
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Noki4 replied to the topic How much does distraction enter into someone recovering in the forum General Discussions on Pain 5 years, 5 months ago
Hello Carolyn,
I am sorry for the loss of your daughter. I feel like most people who live with health issues ask the same question you are asking. I am 55 and have lived with pain for half of my lifetime. I raised three daughters and now have grandchildren. I think for me it was the will to raise my children and now it is the will to live for my…[Read more]
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Noki4 replied to the topic New To Constant Pain, Feeling Helpless in the forum Welcome to The Pain Community 5 years, 5 months ago
Ravennah,
I am sorry to hear that your pain issues have continued. Maybe see if you can get in to see a pain management provider and see if they may have some answers.
My best to you,
Noki -
Noki4 replied to the topic This atmosphere of suspicion is out of control! in the forum Welcome to The Pain Community 5 years, 5 months ago
Natalie,
You wrote what I think every pain patient has repeated over and over again. There needs to be a way that we change the stigma against patients. We have been lumped in with those fighting addiction and like you said we are addicts, we only want to live as best we can.
I don’t have the answers, I keep advocating to those that will listen…[Read more]
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Noki4 replied to the topic Ankylosing Spondilytis in the forum Treatment Options for Pain 5 years, 7 months ago
I was diagnosed about 12 years ago with ankylosing spondylitis. My journey started out with degenerative joint disease and as damage was done through the DJD and osteoarthritis and a few other diseases & conditions I received the ankylosing spondylitis diagnosis.
The exercise is what I have found helps the most to ease the pain and help me…[Read more]
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Noki4 replied to the topic Favorite Recipes in the forum Wellness Issues 5 years, 7 months ago
Hi TightHope,
We are happy to have you join us here at TPC. Cooking is one of my least favorite things to do but these recipes shared here are great.
Noki4
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Noki4 replied to the topic Ankylosing Spondilytis in the forum Treatment Options for Pain 5 years, 7 months ago
Hi Ray Ray,
I live with ankylosing spondylitis. One thing that my doctor has always insisted on is that I keep as active as I can because it can help with the pain. He is also always reminding me to pay attention to my posture.
My best to you and I look forward to speaking with you.Take care,
Noki4 -
Noki4 replied to the topic How to get rid of Osteoarthritis (Knee Pain) in the forum Arthritis Pain 5 years, 7 months ago
Jhonsontic,
I don’t see why you can’t use a massage chair at home. I use a massage thing that lays in my recliner to help ease my aches and pain. Have you saw a doctor about the knee pain so you know what you are dealing with?
My best to you,
Noki4
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Noki4 replied to the topic Hello everyone! in the forum Welcome to The Pain Community 5 years, 7 months ago
Hi TightHope & D,
It is nice to meet you. I have lived with arthritis for over 25 years. It started in my early 20’s. The best thing I found for me was to educate myself about the medical treatments that could offer me pain relief and ways to live with arthritis. It stinks to have it come on us in our younger years.
I look forward to sharing…[Read more]
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Noki4 replied to the topic Mystery Hip pain on one side? Pls help in the forum General Discussions on Pain 5 years, 7 months ago
Hi Leemac,
It is nice to meet you, wish it was under different circumstances. I am not a medical professional however I think it would be best to talk to your doctor about the hip pain. I have degenerative joint disease and it affects all the joints. I am thinking your doctor may probably start out with x-rays or and mri of the hip to see what is…[Read more]
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Noki4 commented on the post, New Year – New Chance to Fight the Pain! 5 years, 10 months ago
I must admit I was thinking she is crazy. However the more I read the more I started to understand where you were coming from. You found yourself faced with two realities, the one the medical community had for you […]
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Micke Brown, BSN, RN wrote a new post 5 years, 11 months ago
This is the third and final series discussion about medical marijuana. I would be remiss if I did not cover the political climate which affects anyone who uses or is considering the use of medical marijuana for […]
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Noki4 replied to the topic Treatment Plans Changed or Reduced in the forum Treatment Options for Pain 5 years, 11 months ago
My insurance company forced my doctor to change the treatment plan that he has had me on for over 20 years. It just isn’t right that someone sitting in an office can tell a medical professional what he can or cannot do. After all he/she is the one that went to medical school and has the best knowledge of what is right for his/her patients.
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