Christal4578

Hi CatesAM,

It was pleasure chatting with you today in chat. I look forward to many more chats with you.

Going back to our chat please remember 1) you are not alone 2) it is okay — to not be okay all the time.

Accepting that our lives have changed doesn’t happen overnight. We each go through the struggle and there is no right way or wrong…[Read more]

I really enjoyed the first webinar in the Healing Art Program and found the exercise of coloring the manual to be very meditative.

Has anyone else experienced this?

Hello Tazman,

Welcome to The Pain Community (TPC). Take a look around the website and let us know if we can be of assistance.

Those are multiple ways that you can interact with others on a journey of pain or have a loved one or friend dealing with pain.

You already found the forums so I want to let you know about the hosted chats we have on…[Read more]

Hello, Detour12,

We are sorry to hear you are experiencing this pain. We are unable to suggest any treatments for you as we are not medical professionals. We read you are going to see a urologist and that is good. Even though you did speak to your doctor it is hard to make a diagnosis over the phone, can you make an appointment and go in to see…[Read more]

CecilHester,

Welcome to The Pain Community (TPC). We would like to invite you to join us on our Tuesday’s Support Conference calls. It is another way to interact with others who may be able to offer suggestions that are helpful to you. Our next call will be on July 24th at 7pm ET, 6pm CT, 5pm MT and 4pm PT. I will include the link where you can…[Read more]

Hi Natalie Hudgins,

Welcome to The Pain Community (TPC). We wish we were meeting under different circumstances. It is beyond scary and frustrating not knowing from one doctor appointment to another if we will be able to receive the needed treatments that work to ease our pain and give us some quality of life.

We are happy that you have found us…[Read more]

Hi MelB,

Welcome to The Pain Community (TPC). We understand as with all chronic illness, people with pain often feel isolated and alone. They can feel separated from their families, friends, communities, and all too often, from life itself.

Here at TPC we understand that people with pain need a safe, judgment free place where they can share and…[Read more]

Hi Terri,

It was wonderful to meet and talk with you on the support conference call. Many of the calls do go to the two hour mark and sometimes beyond that.
Here at, The Pain Community (TPC) we understand that for many who join the calls they do so because they need to hear friendly and caring voices who understand the journey of pain. They need…[Read more]

Hi Terri,

We are so pleased that you are finding The Pain Community (TPC) to be helpful. If you are available we actually have one of the support calls tomorrow, Tuesday, June 5th at 1pm ET.

I do understand how the pain isolates because I also live with pain. At times it can feel like I am the only person left on the planet. That is where…[Read more]

I think we are all always looking for “one more thing to try” in our search for the right mix of things to manage our pain.

I have had to use a far infrared heating pad quite a bit lately to manage my lumbar pain. Spondylolithesis and arthrodesis have been flaring up. I think it is because I was traveling for a week recently and wasn’t as regular…[Read more]

Walking and distraction are great for lots of chronic health conditions. Just stumbled upon this thread and love Dreamcatcher’s Six Word Memoir idea.

Also love, love, love that quote.

Let’s keep moving forward and help each other along the way.

Circling back to comment that I’ve linked my vertigo associated with my migraines to autonomic issues.

It is very frustrating when it happens.

For now, regular acupuncture treatments have been helping to keep the vertigo and the migraines under control quite well.

Plus the usual mix of sleep management, diet management, meditation, hydration…[Read more]

Great new resource created in the UK:

“The Royal College of General Practitioners (RCGP) has launched an Ehlers-Danlos syndromes (EDS) toolkit for GPs and healthcare professionals. The toolkit, created in partnership with EDS UK and funded by the charity, aims to improve the recognition, response to and management of EDS in primary care.

The…[Read more]

The politics around effective pain management have become more out of control lately. It is terribly unfair, nee torture, not treat people with chronic pain. Honestly, those politicians who draft and pass laws with dosing limits are practicing medicine without a license. Maybe a class action lawsuit in Ohio or West Virginia along those lines would…[Read more]

Hi Richard,

Are you still active here on the website or on the phone calls?

Welcome to The Pain Community.

Fred Friend

Welcome, Johnsontic,

Welcome to The Pain Community. Have you checked out some of the blogs and education resources? I find that it is empowering to learn more about pain and management options. It takes so much to bring the pain down to a level that I am able to get out and about or even chat online.

FredFriend

Hi Terri,
Welcome to The Pain Community.
It is so very isolating to live with pain that limits our ability to get out and interact socially. I find that the unpredictability of when I will be feeling up for an outing makes it a challenge to plan things.

Like Kristy, I have found people in my community with the same condition I have that are eager…[Read more]

Welcome, Tiltnturn.

The dog in your photo is gorgeous. Animals are such a great comfort. I have found that pets are a great distraction from whatever is going on with my pain issues.

FredFriend