• I’ve been avoiding ‘night shade family’ vegetables (bell peppers, eggplant, tomatoes, potatoes, etc.) and now find that when I do eat them I get more fatigue and moving around becomes noticeably painful.

    It is a reminder to stick to my salads, steamed broccoli and lean protein sources like beans, fish and poultry.

    Managing my own diet is like…[Read more]

  • Laughter definitely helps me to deal with pain. Sometimes when I’m doing yoga I look around an laugh at how much different I seem to be moving than some of the others around me despite decades of doing yoga. I’ve never been to a laughter yoga class. I should add it to the list of things to be on the look out for near my home.

  • That is outrageous, Noki4, that the insurance company is taking over treatment decisions. I agree that your doctor’s training and the longstanding relationship with you should outweigh what an insurance company administrator has to say on the matter of what will work best for you.

    Have you found any help from your Senator’s office? Sometimes they…[Read more]

  • Nice post. I find that yoga practice makes me more aware of how my body moves. When I’m regularly practicing I feel more secure moving about the world and I perceive less pain then when I skip a few days and am stumbling about the world.

    Like Noki4 says, the motivation to get out of the house and socialize with others is a definite plus and…[Read more]

  • This is like the #PainTamer videos on The Pain Community’s Instagram channel. I have seen some great visuals in the videos to use for meditation. The videos are also on The Pain Community’s Facebook page.

    I really hope more people will submit videos of their #PainTamer Tips and Tricks. We have so much to learn from one another.

  • Three years on I can report that most of the supplements are being tolerated. The herbs and spices didn’t work out very well for me because they aggravated or worsened my GERD problems.

    That core group of supplements really seems to help me. I’ve been off of them for a week or two at a time in preparation for medical procedures or testing and…[Read more]

  • I really enjoyed the first webinar in the Healing Art Program and found the exercise of coloring the manual to be very meditative.

    Has anyone else experienced this?

  • This looks amazing! I really enjoyed the first webinar and am going to try and set aside a few minutes every day to try out the skills I learned. The first webinar and the first exercise were a beautiful […]

  • I recently met several people with XLH and was i name of the types pain that these people live with. The people I met all had tremendous bone pain due to fractures and extra bone growth in addition to the osteoarthritis and spinal stenosis pain that many people are more familiar with.

    fascinated to learn that there are so many different names for…[Read more]

  • I think we are all always looking for “one more thing to try” in our search for the right mix of things to manage our pain.

    I have had to use a far infrared heating pad quite a bit lately to manage my lumbar pain. Spondylolithesis and arthrodesis have been flaring up. I think it is because I was traveling for a week recently and wasn’t as regular…[Read more]

  • FredFriend replied to the topic Keep Moving Forward in the forum Fibromyalgia 3 years ago

    Walking and distraction are great for lots of chronic health conditions. Just stumbled upon this thread and love Dreamcatcher’s Six Word Memoir idea.

    Also love, love, love that quote.

    Let’s keep moving forward and help each other along the way.

  • FredFriend replied to the topic Dizzying in the forum Migraines/Headaches 3 years ago

    Circling back to comment that I’ve linked my vertigo associated with my migraines to autonomic issues.

    It is very frustrating when it happens.

    For now, regular acupuncture treatments have been helping to keep the vertigo and the migraines under control quite well.

    Plus the usual mix of sleep management, diet management, meditation, hydration…[Read more]

  • Great new resource created in the UK:

    “The Royal College of General Practitioners (RCGP) has launched an Ehlers-Danlos syndromes (EDS) toolkit for GPs and healthcare professionals. The toolkit, created in partnership with EDS UK and funded by the charity, aims to improve the recognition, response to and management of EDS in primary care.

    The…[Read more]

  • The politics around effective pain management have become more out of control lately. It is terribly unfair, nee torture, not treat people with chronic pain. Honestly, those politicians who draft and pass laws with dosing limits are practicing medicine without a license. Maybe a class action lawsuit in Ohio or West Virginia along those lines would…[Read more]

  • Hi Richard,

    Are you still active here on the website or on the phone calls?

    Welcome to The Pain Community.

    Fred Friend

  • Welcome, Johnsontic,

    Welcome to The Pain Community. Have you checked out some of the blogs and education resources? I find that it is empowering to learn more about pain and management options. It takes so much to bring the pain down to a level that I am able to get out and about or even chat online.


  • Hi Terri,
    Welcome to The Pain Community.
    It is so very isolating to live with pain that limits our ability to get out and interact socially. I find that the unpredictability of when I will be feeling up for an outing makes it a challenge to plan things.

    Like Kristy, I have found people in my community with the same condition I have that are eager…[Read more]

  • Welcome, Tiltnturn.

    The dog in your photo is gorgeous. Animals are such a great comfort. I have found that pets are a great distraction from whatever is going on with my pain issues.


  • Welcome, Guit30. That is great that you have figured out a way to work with a different pharmacy in order to get the prescriptions you need to manage your back pain. I understand the need for a fully customized pain management program implemented with one’s own doctor to manage Scoliosis, cervical stenosis, spinal stenosis, sciatica, bulging…[Read more]

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