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TPC_YaYa started the topic What is an Advocate and what is Advocacy? in the forum Welcome to The Pain Community 2 years, 7 months ago
Advocacy 101
What is an Advocate?
Advocates are people, paid or unpaid, who speak up for and support the wishes of themselves and/or others. Advocacy is about helping to:State clearly about what is wanted or needed
Seek and obtain basic human rights
Represent the views, impressions or position regarding a situation in order to influence…[Read more] -
TPC_YaYa started the topic TPC Support Calls Every Tuesday in the forum Welcome to The Pain Community 2 years, 7 months ago
Do you feel the need to talk (not type!) and share with others who really understand what it’s like living with chronic pain? If so, The Pain Community invites you to participate in our “TPC Outreach Support Conference Calls,“ that are held every Tuesday evening.
How and when to participate in the calls:
Call in number: 267-807-9601 Passc…[Read more] -
TPC_YaYa started the topic Are People With Pain Judged By What They Wear To Appointments? in the forum General Discussions on Pain 2 years, 7 months ago
People who experience chronic pain often feel that they are judged on their level of pain by their appearance. Do you feel you’re treated differently at a health care appointment if you are dressed well with makeup and hair done, or if you’re clean-shaven versus not wearing any makeup, or not shaving, and wearing more comfortable clothing?
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TPC_YaYa replied to the topic Hello in the forum Welcome to The Pain Community 3 years, 2 months ago
Hi Lumberjack,
It is nice to meet you. Social media isn’t for everyone and we totally understand that. Have you given any thought to joining a support call? If so, we have one every Tuesday at 7pm. It is open discussion so everyone can join in on the conversation. If you would like more info you can read about it here;…[Read more]
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TPC_YaYa replied to the topic Another newbie in the forum Welcome to The Pain Community 3 years, 2 months ago
Hi Joyce,
You can post by hitting reply under any comments that have already been posted or by starting a new posts. If I can be of any help please let me know.
Take care,
TPC YaYa
TPC Community Moderator
outreach@paincommunity.org“The views or opinion(s) contained herein do not necessarily represent those of The Pain Community.”
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TPC_YaYa replied to the topic Hello in the forum Welcome to The Pain Community 3 years, 2 months ago
Hi,
I have found a couple books related to living pain to be helpful.
Just Fine by Carol Sveilich, MA
The Truth About Chronic Pain by Arthur RosenfeldMy go to unrelated to pain reading is by; Nora Roberts, writing as J.B. Robb
Take care,
TPC YaYa
TPC Community Moderator
outreach@paincommunity.org“The views or opinion(s) contained herein d…[Read more]
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TPC_YaYa replied to the topic Pain Relief That Works in the forum Welcome to The Pain Community 3 years, 2 months ago
Hi 6thdan,
I am so sorry your provider doesn’t listen to you. Are you in the position to find a different provider? There are still some good ones out there that do listen. I too have lived with pain for over 30 years and I do very much understand the frustration, anger and all the emotions that comes along with it.
Having support from friends,…[Read more]
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TPC_YaYa replied to the topic Hi, I am new in the forum Welcome to The Pain Community 3 years, 2 months ago
Hi, RobertBNeese231,
Welcome to The Pain Community.
Take a look around and if you need any assistance please let me know. I wanted to share with you that we have a support conference call every Tuesday if you are in the United States. We talk about life in general, the good, the bad and everything in between. The call is free if you have free…[Read more]
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TPC_YaYa replied to the topic Hi, I am new in the forum Welcome to The Pain Community 3 years, 8 months ago
Hi Tiffany,
Welcome to The Pain Community. I understand that for some talking about the pain constantly can make life harder to do with. It’s like you start to sink in the depths of depression and it is hard to fight one’s way out. It can be helpful to share with others who do truly understand. We can support each other and share what has helped…[Read more]
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TPC_YaYa started the topic NightWare system as a form of treatment for PTSD patients. in the forum Military/Veterans 4 years, 1 month ago
The U.S. Food and Drug Administration believes a mobile app could help people with terrifying nightmares.
The federal agency has approved the NightWare system as a form of treatment for PTSD patients.
NightWare is only available for Apple Watches.It allows clinicians to monitor patients who suffer from traumatic nightmares, which have been…[Read more]
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TPC_YaYa replied to the topic New to the community in the forum Welcome to The Pain Community 4 years, 1 month ago
Welcome to TPC, if we can help you find your way around the site please let us know.
TPC YaYa
TPC Community Moderator“The views or opinion(s) contained herein do not necessarily represent those of The Pain Community.”
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TPC_YaYa replied to the topic Hi all in the forum Welcome to The Pain Community 4 years, 1 month ago
FloresDavid,
It is nice to meet you. If we can help you find your way around the site please let us know.
TPC Yaya
TPC Community Moderator“The views or opinion(s) contained herein do not necessarily represent those of The Pain Community.”
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TPC_YaYa replied to the topic Being a caregiver when you live with pain in the forum Caregivers 4 years, 11 months ago
Hi,
I am sorry to hear all you have been through. I took care of my in-laws and after my mother in law passed we had to move my father in law in with us. He had a few health issues but nothing major. He did not want to do anything but sit and watch tv and sleep. It got to the point that he could hardly walk and was falling a good bit.
His…[Read more]
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TPC_YaYa started the topic September is Pain Awareness Month in the forum Welcome to The Pain Community 5 years, 3 months ago
September is Pain Awareness Month.
The Pain Community wants to hear about your journey with pain and pain management. We want to hear the good, the bad and the ugly. The Pain Community will share anonymous snippets of your stories on social media to help bring awareness about living with pain. #tellyourstorySend your stories to,…[Read more]
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TPC_YaYa replied to the topic Ankylosing Spondilytis in the forum Treatment Options for Pain 5 years, 7 months ago
Hello Ray Ray,
We are glad to see you found Noki4 to talk too about ankylosing spondilytis. We would also like to let you know that we have a couple other ways to interact with others who understand the journey of pain.
We have live hosted chats here on the website every Monday-Wednesday-Friday at 11:00am ET in the TPC Group Chat Room.
We also…[Read more]
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TPC_YaYa replied to the topic Hello everyone! in the forum Welcome to The Pain Community 5 years, 7 months ago
Hello TightHope and D,
Welcome to The Pain Community (TPC). We are happy you found us but sure do wish we were meeting under different circumstances.
We have lots of resources here on the website and we offer different ways to meet and talk to others. We have hosted chats here on the website on Monday-Wednesday-Friday at 11am ET, in the group…[Read more]
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TPC_YaYa replied to the topic New to this in the forum Welcome to The Pain Community 5 years, 8 months ago
Hi, welcome to TPC. We each go through the grieving process. Once I found that I was able to accept my new normal I found it easier to concentrate on moving forward. It isn’t easy to accept the changes a life of pain brings.
We hope that you will find resources and blogs that are helpful to you. We have hosted chats Monday-Wednesday-Friday at…[Read more]
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TPC_YaYa replied to the topic Neck Pain in the forum Other Specific Pain Disorders 5 years, 8 months ago
Hi, Hamonfire
I live with neck pain. May I ask what type of information or advice that you are asking for?
My neck pain is a result of progressive degenerative joint disease that started 28 years ago.
Take care,
TPC Yaya
TPC Community Moderator“The views or opinion(s) contained herein do not necessarily represent those of The Pain Community.”
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TPC_YaYa replied to the topic Am I crazy or what? in the forum Treatment Options for Pain 5 years, 10 months ago
Hi Doug,
With chronic back pain and conditions the way we sit can impact us. After reading your post I decided to do a little research and I found something on Amazon that may be what you are looking for.
It says “When your posture starts to slip, the device vibrates to remind you to straighten up.”It is called the:
Upright GO Posture Trainer…[Read more] -
TPC_YaYa replied to the topic I am so overwhelmed with pain please help me! in the forum Back Pain 5 years, 10 months ago
Hi Skypanther,
I am sorry to hear all that you have going on. I hope you were able to hire the CNA to help you with your Mother. Living with pain and being the soul caregiver for a loved one is extremely hard. I am not a medical professional so I cannot give medical advice but I can make the suggestion that you speak to your doctor and let them…[Read more]
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