Teresa Shaffer

Puma,
We also had that plan to travel when he retires. He will turn 60 this year, so we have a few more years to go.
Plus we have hit a snag in the road so not sure that traveling will be in the cards. One of our daughters was given the diagnosis of cancer.
The insurance that she had through work turned out to be horrible. Lots of big co-pays…[Read more]

Hi Puma,

You sound just like me. Pain has been the third person in our relationship for 27 out of the 28 years we have been together. I have always tried to protect him. He is beyond wonderful, beyond supportive, beyond compassionate and he would fly to the moon if it could help ease my pain. Even though I know all of this, I have always tried to…[Read more]

Ms. Kitty,

I gasped when I read that you had a mis-step and went in to the water again. I am so happy that you are so smart and know how to get out of the water and back to BD so he can help you dry off.

Take care
Noki4

I am also on that journey of finding the “2016” me.

Each year, each month, each week, we find things changing when it comes to our pain and how it affects our life.
What I could do in 2015 has changed. The new year brings new restrictions, I really dislike that word, restrictions, but there is not a better one. It is what it is, I am restricted…[Read more]

I totally agree with what TPC YaYa shared. I have degenerative joint disease and I am bone on bone, no discs left. That makes it hard for me to bend and the reacher/grabbers are wonderful tools to have in our pain toolbox.
I have run in to the same issues, finding one strong enough, small enough to carry around and affordable.

To answer your…[Read more]

Glad to hear you and Bd are staying warm on the cold days and nights.

Noki4

I totally agree about walking helping to relieve some of our pain. Over the years I discovered for me that the longer I was down…the more stiffness and pain I had. I cannot run a race or walk miles or even several blocks but I can walk around enough to keep some of the stiffness and pain at bay.
There are days that walking is impossible due to…[Read more]

Excellence ideas. We all can benefit from adding different types of tools to our day to day toolboxes.

Noki4

BD,

I have heard you mention about writing down what the different pain levels mean to each of us. I think that is an excellent idea. After all we may have some of the same diseases/conditions/syndromes but the similarity stops there.
We each have different pain thresholds, different ways we interact with our pain levels. I have been meaning to…[Read more]

The winds pulling on the Lonoh and high waters sounds a bit scary. When that happens at the dock does the water become rough like it does out at sea? I image the Lonoh, you and Ms. Kitty being rocked side to side and waves. It made my day to read that your neighbors had you over for Christmas dinner, I don’t worry as much knowing you have someone…[Read more]

I have been thinking about you and Bd with all the rain and storms that have been tossing around lately. I am so happy that Bd has you to look after him. Don’t worry about the picture and your tongue sticking out, I think you look beautiful in any pose. I cannot wait to hear more about the red bug Santa brought you, that sounds like fun.

Noki4

Hi Ms. Kitty,

To help start Ms. Kitty’s world off…I hope you don’t mind that I am sharing one of your photo’s aboard the Lonoh that Bd sent to me.
I look forward to seeing many more pictures of your adventures.

Noki4

Hello,

I am so sorry to read the journey you are on. Chronic pain conditions can be hard to diagnosis and that is beyond frustrating for the person who lives with the pain. It is hard to make a treatment plan to help ease the pain if one does not know what is causing the pain. I do hope your healthcare providers are searching for the answers you…[Read more]

Well said my friend…

I feel it is safe to say that we are all happy that she is no longer fighting the vicious cycles of chronic pain with the added demons of cancer pain.
At the same time, we want her back, we miss her, we want to chat with her on social media and in The Pain Communities chat room. We want her laughter, her humor, her support,…[Read more]

Hi, Shadowbox,

It is nice to meet you. I do wish it was under different circumstances. You are so right, we each have to find our way to accept what life has become while living with pain. Support is a very important key but it is up to the one living with pain to decide how to move forward or not to move forward. It is a struggle all the way. It…[Read more]

Alexia,

I hope you received my message to you. I am sorry I did not see it earlier. If you look at the bottom of page when you sign in to chat, you will see a small icon with a number one in it. Click on that and you will be able to see our message box. Here on the site you can send private messages to members and I received the one you sent me.…[Read more]

Dee,

So sorry it failed. I know how hard it is to get our hopes up that a treatment will work and then to have it fail. However, don’t give up…keep searching for treatments and keep coming back here to talk with us and receive support. You are not alone!

Take care,
Noki4

Alexia,

First let me say, how truly sorry I am you have been treated so horrible. No one….No one.. should every shame you for being in pain.
There is such stigma surrounding those who live with pain because of illegal drug addiction/prescription addiction. People living with pain have been lumped into the same category as those who have made a…[Read more]

I grew up going to church and for many years after I left home I continued to go. I moved to another state and for many different reasons stopped attending church on Sundays. With that being said, I do feel that my spirit is fulfilled in a different way now. I still have all the beliefs I held as a child growing up in church the only difference is…[Read more]