@noki4
Active 4 years, 10 months ago-
Noki4 replied to the topic Where are my RA peeps? in the forum Arthritis Pain 7 years, 4 months ago
Hi Mdmc,
For me having an RA flair can last any where from a day of increased pain to a week or more of additional pain. It is hard never knowing how long a flair may last and how much will the day to day pain increase.
Take care
Noki4 -
Noki4 replied to the topic Husband suffering from bruxism in the forum Wellness Issues 7 years, 5 months ago
Hi Saniya,
My youngest daughter started grinding her teeth as a teenager. It was loud enough that I could hear the grinding from my bedroom that was across the hall from her’s. I took her to see her dentist and he recommended a custom fit mouth guard. By custom fit I mean they took impressions of her mouth and then the mouth guard was made to fit…[Read more]
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Noki4 replied to the topic Husband suffering from bruxism in the forum Wellness Issues 7 years, 5 months ago
Hi Saniya,
My youngest daughter started grinding her teeth as a teenager. It was loud enough that I could the grinding from my bedroom that was across the hall from her’s. I took her to see her dentist and he recommended a custom fit mouth guard. By custom fit I mean they took impressions of her mouth and then the mouth guard was made to fit…[Read more]
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Noki4 replied to the topic I'm new to this forum, not new to pain in the forum Welcome to The Pain Community 7 years, 7 months ago
Hi Willowwisp,
Welcome to family at TPC. I see that TPC YaYa has already told you about the great ways to get and give support using the chats and phone support group.
I have to share that the phone support group is like talking to old friends, it is so relaxed and I love how it is open discussion. We just get on there and share and support and…[Read more] -
Noki4 replied to the topic Help with itching from taking opioids in the forum Treatment Options for Pain 7 years, 9 months ago
Hi Ruthie,
I don’t have the whole body itching from the patches but I do get the itching around the edges of the patches from time to time. One thing that has helped me for the itching around my patches is to clean the spot with an adhesive remover to make sure I get all the old adhesive off. Now with that being said you have to make sure you…[Read more]
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Noki4 replied to the topic What could be the problem? in the forum General Discussions on Pain 7 years, 9 months ago
DaleAdams,
I am so sorry to read that you have not been fully diagnosed yet. It can be so frustrating trying to deal with the unknown. What medications may or may not help, what therapies may or may not help. I do hope that your healthcare providers are helpful in getting the diagnoses so you can begin to work on a pain toolbox that will carry…[Read more]
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Noki4 replied to the topic The Log Book of Lonoh – A Dream Come True in the forum General Discussions on Pain 7 years, 11 months ago
Oh to be in the 70’s would be great. We keep flip flopping between temperatures and my chronic pain body does not like it.
It really would be better if it would just get cold here and stay cold. Of course I would prefer it get warm and stay warm but I live in the North so we have cold winters.Quieter is good as long as you do not lose your good…[Read more]
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Noki4 replied to the topic What could be the problem? in the forum General Discussions on Pain 7 years, 11 months ago
Hello Fortunateone,
It appears you had a long year. I don’t know if it helps to hear but I have the diagnosis of chronic muscle strain/spasms in my chest, rib and shoulder areas. They tell me it stems from the degenerative joint disease that I have in my neck and back.
That is one of the long list of things that have gone wrong with my body. I…[Read more]
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Noki4 replied to the topic Welcome! in the forum Welcome to The Pain Community 8 years, 1 month ago
Hi Sarah4108,
Welcome to TPC. So sorry to hear of all the issues you are dealing with. I totally understand the degenerative disc issue. Mine started when I was 24 years old and I am now 52. It has been a long journey but I am still moving forward.
I feel staying positive or has positive as possible helps with the recovery and daily living with…[Read more] -
Noki4 replied to the topic What would you say to providers about your pain in the forum General Discussions on Pain 8 years, 1 month ago
Hi Ynevar,
I have Ankylosing spondylitis and it is sad that your insurance seems to disregard the facts that you do not have to be HLA-B27 positive to have AS. A majority of the people with this marker never contract ankylosing spondylitis.
I understand that our healthcare providers are busy and backlogged but that is no excuse to not fight our…[Read more]
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Noki4 commented on the post, Do As I Say, Not As I Did! 8 years, 3 months ago
Hi William,
Thank you for the comments. I do totally agree that people living with pain should not have to fear losing the pain treatments that allow them to have some normalcy in their lives. However that is […]
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Noki4 commented on the post, Now is the Time to Scream, Holler and Shout! 8 years, 3 months ago
We all have to keep fighting the good fight. We need to hold the media organizations to telling the truth not just printing numbers that they get from a self-appointed expert. We need to keep the media honest and […]
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Noki4 replied to the topic Hello from Newburgh, NY in the forum Welcome to The Pain Community 8 years, 3 months ago
Hi Mdmc,
Welcome to the TPC family. I will start out admitting that I too have a love of chocolate and my other love is for Mountain Dew. Not a healthy combination but it gets me through the tough pain days.
I live with rheumatoid and osteoarthritis and a few more issues. I totally understand wanting to keep moving to keep the muscles strong. If…[Read more]
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Noki4 replied to the topic The Log Book of Lonoh – A Dream Come True in the forum General Discussions on Pain 8 years, 3 months ago
Hi Bd,
After you and I talked in the chat room I got to thinking about how I was worried you were giving up on life. I came to the conclusion that we all need to think about our next steps in life, the who, the what, the when and the where.
It just makes good sense to at least talk about it. Nothing has to happen in the here and now but at least…[Read more] -
Noki4 replied to the topic What would you say to providers about your pain in the forum General Discussions on Pain 8 years, 4 months ago
Hi Ynevar,
Those are all really good points you made. It boggles the mind that some healthcare professionals fail to realize that patients live in their bodies so generally we can tell when something is not right.
Noki4
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Noki4 replied to the topic Nixons Continuing Bad in the forum General Discussions on Pain 8 years, 4 months ago
Hi William,
I shared a post to you and two others on the Welcome page but I wanted to share here with you also.
I want to welcome you and share with you that the support I have gotten here at The Pain Community is wonderful. The discussion boards are not real active right now but their Facebook page is, here is the link;…[Read more] -
Noki4 replied to the topic Welcome! in the forum Welcome to The Pain Community 8 years, 4 months ago
Hello William, EmilySpeaks and KSouth,
I am sorry it has taken me so long to welcome you to the community. I have been dealing with my pain issues, you know how it is.
I want to welcome you and share with you that the support I have gotten here at The Pain Community is wonderful. The discussion boards are not real active right now but their…[Read more]
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Noki4 replied to the topic Hi, New here, could REALLY use some advice re: adult scoliosis, TMJ in the forum Welcome to The Pain Community 8 years, 4 months ago
Hi Berkeleygirl,
So sorry it has taken me so long to reply I missed your posting. It is really hard to talk to our healthcare providers sometimes. They are given 10-15 minutes for each appointment and for some they stick to that schedule. In my journey with pain I have found that if a health provider will not take the time to listen, to really…[Read more]
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Noki4 replied to the topic Random Treatment Options in the forum Treatment Options for Pain 8 years, 4 months ago
Hi Emily,
I am happy to hear the dry needling is helping but sad to hear you are still fighting to get back in physical therapy. It is crazy how hard we have to fight for treatments that help us.
Noki4
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Noki4 replied to the topic Random Treatment Options in the forum Treatment Options for Pain 8 years, 5 months ago
Lizzben,
How are the treatments going?
Noki4
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