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Noki4 commented on the post, Do As I Say, Not As I Did! 8 years, 3 months ago
Hi William,
Thank you for the comments. I do totally agree that people living with pain should not have to fear losing the pain treatments that allow them to have some normalcy in their lives. However that is […]
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Noki4 commented on the post, Now is the Time to Scream, Holler and Shout! 8 years, 3 months ago
We all have to keep fighting the good fight. We need to hold the media organizations to telling the truth not just printing numbers that they get from a self-appointed expert. We need to keep the media honest and […]
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Noki4 replied to the topic Hello from Newburgh, NY in the forum Welcome to The Pain Community 8 years, 3 months ago
Hi Mdmc,
Welcome to the TPC family. I will start out admitting that I too have a love of chocolate and my other love is for Mountain Dew. Not a healthy combination but it gets me through the tough pain days.
I live with rheumatoid and osteoarthritis and a few more issues. I totally understand wanting to keep moving to keep the muscles strong. If…[Read more]
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TPC_YaYa replied to the topic Ehlers-Danlos Syndrome in the forum Other Specific Pain Disorders 8 years, 3 months ago
Hello Snow,
Thank you for sharing your pain journey with us. Gardening can be relaxing and as you said help keep our muscles strong. I enjoyed working in my many flower gardens over the years.
I would like to share with you that we have live hosted chats here on the website
every Monday-Wednesday-Friday at 11:00am ET. We have an evening chat on…[Read more] -
TPC_YaYa replied to the topic mumblings of a hermit in the forum General Discussions on Pain 8 years, 3 months ago
Bd,
We at TPC would like to thank you for sharing your journey with us. Your writings share with all who read them the very truth of what a life of pain is all about. You inspire us to look for the beauty of each day while also allowing us to see that there is prep work for our unknown futures.
If we can help you along this journey please reach…[Read more] -
TPC_YaYa replied to the topic Hello from Newburgh, NY in the forum Welcome to The Pain Community 8 years, 3 months ago
Hello Mdmc,
Welcome to TPC. Sounds like you have a plan of attack in place to beat the pain back and that is fabulous.
We have a great group of folks here who truly understand this journey we call pain.We have live hosted chats here on the website every Monday-Wednesday-Friday at 11:00am ET.
We have an evening chat on Thursday’s at 7:30pm…[Read more] -
TPC_YaYa replied to the topic Welcome! in the forum Welcome to The Pain Community 8 years, 3 months ago
Hello Snow,
Welcome to TPC. You can change your profile picture by looking at the top of the window for the green bar. You will see Profile – Settings – Notifications – Log out.
Clink on the profile and it takes you to your personal profile and you can change your picture.
Here are two photo’s that I hope will help. If I can be of more help or…[Read more]
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Noki4 replied to the topic The Log Book of Lonoh – A Dream Come True in the forum General Discussions on Pain 8 years, 3 months ago
Hi Bd,
After you and I talked in the chat room I got to thinking about how I was worried you were giving up on life. I came to the conclusion that we all need to think about our next steps in life, the who, the what, the when and the where.
It just makes good sense to at least talk about it. Nothing has to happen in the here and now but at least…[Read more] -
TPC_YaYa replied to the topic What difficulties do you have while grocery shopping? in the forum General Discussions on Pain 8 years, 4 months ago
Ynver,
Those are all really good ideas. I also have the issues with reaching stuff on higher shelves and using the bottom of the cart. It is hard enough to pick up the heavier items but then to bend to get them under the buggy is madness some days. Once I get heavy things like washing detergent or cases of soda down there I have a hard time…[Read more]
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Noki4 replied to the topic What would you say to providers about your pain in the forum General Discussions on Pain 8 years, 4 months ago
Hi Ynevar,
Those are all really good points you made. It boggles the mind that some healthcare professionals fail to realize that patients live in their bodies so generally we can tell when something is not right.
Noki4
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Noki4 replied to the topic Nixons Continuing Bad in the forum General Discussions on Pain 8 years, 4 months ago
Hi William,
I shared a post to you and two others on the Welcome page but I wanted to share here with you also.
I want to welcome you and share with you that the support I have gotten here at The Pain Community is wonderful. The discussion boards are not real active right now but their Facebook page is, here is the link;…[Read more] -
Noki4 replied to the topic Welcome! in the forum Welcome to The Pain Community 8 years, 4 months ago
Hello William, EmilySpeaks and KSouth,
I am sorry it has taken me so long to welcome you to the community. I have been dealing with my pain issues, you know how it is.
I want to welcome you and share with you that the support I have gotten here at The Pain Community is wonderful. The discussion boards are not real active right now but their…[Read more]
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Noki4 replied to the topic Hi, New here, could REALLY use some advice re: adult scoliosis, TMJ in the forum Welcome to The Pain Community 8 years, 4 months ago
Hi Berkeleygirl,
So sorry it has taken me so long to reply I missed your posting. It is really hard to talk to our healthcare providers sometimes. They are given 10-15 minutes for each appointment and for some they stick to that schedule. In my journey with pain I have found that if a health provider will not take the time to listen, to really…[Read more]
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Noki4 replied to the topic Random Treatment Options in the forum Treatment Options for Pain 8 years, 4 months ago
Hi Emily,
I am happy to hear the dry needling is helping but sad to hear you are still fighting to get back in physical therapy. It is crazy how hard we have to fight for treatments that help us.
Noki4
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Noki4 replied to the topic Random Treatment Options in the forum Treatment Options for Pain 8 years, 5 months ago
Lizzben,
How are the treatments going?
Noki4
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Noki4 replied to the topic Open For Suggestions! in the forum Welcome to The Pain Community 8 years, 5 months ago
Wendyli,
I am so sorry that you have had such a terrible journey. As a mother I would have done the exact same thing. Our children always come first. It is beyond frustrating that healthcare providers do not seem to agree with us.
I do not know how to help you find a new provider but I will be your friend, a shoulder to lean on.I also would…[Read more]
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Noki4 replied to the topic Open For Suggestions! in the forum Welcome to The Pain Community 8 years, 5 months ago
Wendyli,
I am so sorry that you have had such a terrible journey. As a mother I would have done the exact same thing. Our children always come first. It is beyond frustrating that healthcare providers do not seem to agree with us.
I do not know how to help you find a new provider but I will be your friend, a shoulder to lean on.I also would…[Read more]
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Noki4 replied to the topic The Log Book of Lonoh – A Dream Come True in the forum General Discussions on Pain 8 years, 6 months ago
Sounds like when the tidal surge is up it is best to stay on the Lonoh if possible so you do not have to climb to get back aboard. I think that AC is a fabulous idea for both you and Ms. Kitty. Not sure how it affects you but the heat in the summer is as bad as the cold in the winter for me. Don’t get me wrong I will take hot temps over cold and…[Read more]
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Noki4 replied to the topic mumblings of a hermit in the forum General Discussions on Pain 8 years, 7 months ago
I think it is important to stop and take a look at where I have been — where I am now — and where I am going.
Looking back can give me joy and anguish but it is the past and it is best to let the past be just that — the past.
Living in the here and now — the present — can be and is — very trying and frustrating and scary and downright crazy…[Read more] -
Noki4 replied to the topic The Log Book of Lonoh – A Dream Come True in the forum General Discussions on Pain 8 years, 7 months ago
I have to say I envy you and the life you have craved out for you and Ms. Kitty. I think the world would be a much nicer place if we all de-cluttered and down-sized our lives and lived more in the day rather then letting the demands of each day rule how we live.
Much love always
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