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Hi Willowwisp,

Welcome to family at TPC. I see that TPC YaYa has already told you about the great ways to get and give support using the chats and phone support group.
I have to share that the phone support group is like talking to old friends, it is so relaxed and I love how it is open discussion. We just get on there and share and support and…[Read more]

Hi Willowwisp,

We are glad that you found us and we want you to know that you are not alone on this journey and we want to reach out and help you the best way we can.

It is very hard to keep one’s spirit’s up all the time when we live with pain. It is physically and emotionally draining on us.

I would like to share a couple different ways that…[Read more]

Hi Ruthie,

I don’t have the whole body itching from the patches but I do get the itching around the edges of the patches from time to time. One thing that has helped me for the itching around my patches is to clean the spot with an adhesive remover to make sure I get all the old adhesive off. Now with that being said you have to make sure you…[Read more]

Hi ToebeanS,

Welcome to The Pain Community discussion forums we are happy to meet you. We would like to invite you to check out our live hosted chats, Monday-Wednesday-Friday at 11am ET. The chat room is located under the “community” tab at the top of this page.

We also offer Outreach Support calls 4 times a month on Tuesday’s.

The call in…[Read more]

DaleAdams,

I am so sorry to read that you have not been fully diagnosed yet. It can be so frustrating trying to deal with the unknown. What medications may or may not help, what therapies may or may not help. I do hope that your healthcare providers are helpful in getting the diagnoses so you can begin to work on a pain toolbox that will carry…[Read more]

Well we are very happy that you and Bd made it through the storms.
You take good care of each other.

TPC YaYa
TPC Community Moderator
“The views or opinion(s) contained herein do not necessarily represent those of The Pain Community.”

Oh to be in the 70’s would be great. We keep flip flopping between temperatures and my chronic pain body does not like it.
It really would be better if it would just get cold here and stay cold. Of course I would prefer it get warm and stay warm but I live in the North so we have cold winters.

Quieter is good as long as you do not lose your good…[Read more]

Hello Fortunateone,

It appears you had a long year. I don’t know if it helps to hear but I have the diagnosis of chronic muscle strain/spasms in my chest, rib and shoulder areas. They tell me it stems from the degenerative joint disease that I have in my neck and back.

That is one of the long list of things that have gone wrong with my body. I…[Read more]

Hi Barb,

No apology needed for making a long post. The forums here at The Pain Community are here for you. We want you to have a safe place to vent, ramble, to get support and to give support. We understand that it can be very difficult and frustrating to find the right words to use when we talk to healthcare providers.

We would like to invite…[Read more]

I think it is scary for those who are closet to us because they can fully see our health declining.
Also if they are close to us and see us all the time, the change can be dramatic from one day to the next and that can and is shocking for them.

You are right about the look in their eyes and us being able to tell from looking at them if they get…[Read more]

I have been recallecent in following the forums on the site. After I moderated chat today, I took a hint from something bd said in chat and clicked on the forums link.
I am definitely glad that I did. I learned a lot of pearls of wisdom from this thread alone. I will be writing a log book on how my body adapts to being taken off of morphine and to…[Read more]

Ms. Kitty,

We understand that you are a big girl and can take care of yourself. Even so Bd is going to worry about you. We all worry about you so please do be careful when you are out roaming the docks of the bay.

TPC YaYa
TPC Community Moderator

“The views or opinion(s) contained herein do not necessarily represent those of The Pain Community.”

The cold has also began rolling in over the mountains here in WV. I understand the tight muscles and such. It has only just begun and I already feel like it is going right through the bones.

I think at some point we all feel exactly as you in regards to the question, are we okay. How does one answer that question when the answer is not…[Read more]

Hello Sarah4108,

It is nice to meet you, welcome to The Pain Community. I see that Noki4 mentioned the other resources that we have here on the website.

Our chats are at 11am ET on Monday – Wednesday – Friday and at 7:30pm ET on Thursday night.

The outreach support conference calls are 4 times a month and they are on Tuesdays.
The link below…[Read more]

Hi Sarah4108,

Welcome to TPC. So sorry to hear of all the issues you are dealing with. I totally understand the degenerative disc issue. Mine started when I was 24 years old and I am now 52. It has been a long journey but I am still moving forward.
I feel staying positive or has positive as possible helps with the recovery and daily living with…[Read more]

Hi Ynevar,

I have Ankylosing spondylitis and it is sad that your insurance seems to disregard the facts that you do not have to be HLA-B27 positive to have AS. A majority of the people with this marker never contract ankylosing spondylitis.

I understand that our healthcare providers are busy and backlogged but that is no excuse to not fight our…[Read more]

I am so glad that your son got to come for a visit. We do tend to over-do when we have family or friends come for a visit.

Sounds like Ms. Kitty has gotten very comfortable with her surroundings and from reading her post on the other forum she has made a few friends (even though she would never admit that).

Our weather has turned cold at night…[Read more]

Awww Ms. Kitty we know you are a sweetie underneath the grumpy exterior. You are so kind to let them come aboard to visit from time to time.

TPC YaYa
TPC Community Moderator
“The views or opinion(s) contained herein do not necessarily represent those of The Pain Community.”

Bd,

Beautiful thoughts & insights shared with us, thank you 🙂

TPC_Yaya
TPC Community Moderator

“The views or opinion(s) contained herein do not necessarily represent those of The Pain Community.”