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Noki4 commented on the post, Now is the Time to Scream, Holler and Shout! 8 years, 3 months ago
We all have to keep fighting the good fight. We need to hold the media organizations to telling the truth not just printing numbers that they get from a self-appointed expert. We need to keep the media honest and […]
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Noki4 replied to the topic Hello from Newburgh, NY in the forum Welcome to The Pain Community 8 years, 3 months ago
Hi Mdmc,
Welcome to the TPC family. I will start out admitting that I too have a love of chocolate and my other love is for Mountain Dew. Not a healthy combination but it gets me through the tough pain days.
I live with rheumatoid and osteoarthritis and a few more issues. I totally understand wanting to keep moving to keep the muscles strong. If…[Read more]
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Noki4 replied to the topic The Log Book of Lonoh – A Dream Come True in the forum General Discussions on Pain 8 years, 3 months ago
Hi Bd,
After you and I talked in the chat room I got to thinking about how I was worried you were giving up on life. I came to the conclusion that we all need to think about our next steps in life, the who, the what, the when and the where.
It just makes good sense to at least talk about it. Nothing has to happen in the here and now but at least…[Read more] -
Noki4 replied to the topic What would you say to providers about your pain in the forum General Discussions on Pain 8 years, 4 months ago
Hi Ynevar,
Those are all really good points you made. It boggles the mind that some healthcare professionals fail to realize that patients live in their bodies so generally we can tell when something is not right.
Noki4
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Noki4 replied to the topic Nixons Continuing Bad in the forum General Discussions on Pain 8 years, 4 months ago
Hi William,
I shared a post to you and two others on the Welcome page but I wanted to share here with you also.
I want to welcome you and share with you that the support I have gotten here at The Pain Community is wonderful. The discussion boards are not real active right now but their Facebook page is, here is the link;…[Read more] -
Noki4 replied to the topic Welcome! in the forum Welcome to The Pain Community 8 years, 4 months ago
Hello William, EmilySpeaks and KSouth,
I am sorry it has taken me so long to welcome you to the community. I have been dealing with my pain issues, you know how it is.
I want to welcome you and share with you that the support I have gotten here at The Pain Community is wonderful. The discussion boards are not real active right now but their…[Read more]
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Noki4 replied to the topic Hi, New here, could REALLY use some advice re: adult scoliosis, TMJ in the forum Welcome to The Pain Community 8 years, 4 months ago
Hi Berkeleygirl,
So sorry it has taken me so long to reply I missed your posting. It is really hard to talk to our healthcare providers sometimes. They are given 10-15 minutes for each appointment and for some they stick to that schedule. In my journey with pain I have found that if a health provider will not take the time to listen, to really…[Read more]
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Noki4 replied to the topic Random Treatment Options in the forum Treatment Options for Pain 8 years, 4 months ago
Hi Emily,
I am happy to hear the dry needling is helping but sad to hear you are still fighting to get back in physical therapy. It is crazy how hard we have to fight for treatments that help us.
Noki4
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Noki4 replied to the topic Random Treatment Options in the forum Treatment Options for Pain 8 years, 5 months ago
Lizzben,
How are the treatments going?
Noki4
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Noki4 replied to the topic Open For Suggestions! in the forum Welcome to The Pain Community 8 years, 5 months ago
Wendyli,
I am so sorry that you have had such a terrible journey. As a mother I would have done the exact same thing. Our children always come first. It is beyond frustrating that healthcare providers do not seem to agree with us.
I do not know how to help you find a new provider but I will be your friend, a shoulder to lean on.I also would…[Read more]
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Noki4 replied to the topic Open For Suggestions! in the forum Welcome to The Pain Community 8 years, 5 months ago
Wendyli,
I am so sorry that you have had such a terrible journey. As a mother I would have done the exact same thing. Our children always come first. It is beyond frustrating that healthcare providers do not seem to agree with us.
I do not know how to help you find a new provider but I will be your friend, a shoulder to lean on.I also would…[Read more]
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Noki4 replied to the topic The Log Book of Lonoh – A Dream Come True in the forum General Discussions on Pain 8 years, 6 months ago
Sounds like when the tidal surge is up it is best to stay on the Lonoh if possible so you do not have to climb to get back aboard. I think that AC is a fabulous idea for both you and Ms. Kitty. Not sure how it affects you but the heat in the summer is as bad as the cold in the winter for me. Don’t get me wrong I will take hot temps over cold and…[Read more]
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Noki4 replied to the topic mumblings of a hermit in the forum General Discussions on Pain 8 years, 7 months ago
I think it is important to stop and take a look at where I have been — where I am now — and where I am going.
Looking back can give me joy and anguish but it is the past and it is best to let the past be just that — the past.
Living in the here and now — the present — can be and is — very trying and frustrating and scary and downright crazy…[Read more] -
Noki4 replied to the topic The Log Book of Lonoh – A Dream Come True in the forum General Discussions on Pain 8 years, 7 months ago
I have to say I envy you and the life you have craved out for you and Ms. Kitty. I think the world would be a much nicer place if we all de-cluttered and down-sized our lives and lived more in the day rather then letting the demands of each day rule how we live.
Much love always
Noki4 -
Noki4 replied to the topic Ms. Kitty's World in the forum General Discussions on Pain 8 years, 7 months ago
Thank you Ms. Kitty…..I needed some laughter in my life today.
Noki4
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Noki4 replied to the topic mumblings of a hermit in the forum General Discussions on Pain 8 years, 8 months ago
Years ago we did not have the laptops and cell phones and life went on. Today however we find the technology allows us to reach out from the comfort and security of our homes to interact with others who live with pain and are on this journey.
It allows us to know that we are not alone. It is that ability to reach out that helps us to move forward…[Read more]
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IcRuthie changed their profile picture 8 years, 9 months ago
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IcRuthie replied to the topic The Log Book of Lonoh – A Dream Come True in the forum General Discussions on Pain 8 years, 9 months ago
It is beginning to warm up a bit here in Michigan but you can’t beat the Florida weather we had when we visited you. I have some pictures I took that I would like to place here but will need to ask Noki how. I wish I had taken more however it is photographed in memories.
To be so close to nature like you are is such a gift. The music all…[Read more]
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Noki4 replied to the topic The Log Book of Lonoh – A Dream Come True in the forum General Discussions on Pain 8 years, 9 months ago
Hi Bd,
I totally agree with YaYa, so happy you have great dock mates and so happy to hear Ms. Kitty found her way back home. You are going to have to have a talk with her and find out her new sunning spots.
Take care
Noki4 -
Noki4 replied to the topic Welcome! in the forum Welcome to The Pain Community 8 years, 9 months ago
Hi Sudsysuzy,
Nice to see you and meet you. I have found that by interacting here in the forums, on the chats and on the monthly support calls that it helps me a lot. It gives me the chance to share my pain journey with others in hopes of helping them and they help me.
Hope to see you around more often
Take care
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