@marinesargeant
Active 9 years, 4 months ago-
Noki4 replied to the topic Ms. Kitty's World in the forum General Discussions on Pain 8 years, 11 months ago
Glad to hear you and Bd are staying warm on the cold days and nights.
Noki4
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Noki4 replied to the topic Painiac Shuffle, Move & More in the forum Wellness Issues 8 years, 11 months ago
I totally agree about walking helping to relieve some of our pain. Over the years I discovered for me that the longer I was down…the more stiffness and pain I had. I cannot run a race or walk miles or even several blocks but I can walk around enough to keep some of the stiffness and pain at bay.
There are days that walking is impossible due to…[Read more] -
Noki4 replied to the topic Caregiving As a Pain Management Tool in the forum Caregivers 8 years, 11 months ago
Excellence ideas. We all can benefit from adding different types of tools to our day to day toolboxes.
Noki4
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Noki4 replied to the topic mumblings of a hermit in the forum General Discussions on Pain 8 years, 11 months ago
BD,
I have heard you mention about writing down what the different pain levels mean to each of us. I think that is an excellent idea. After all we may have some of the same diseases/conditions/syndromes but the similarity stops there.
We each have different pain thresholds, different ways we interact with our pain levels. I have been meaning to…[Read more] -
Noki4 replied to the topic The Log Book of Lonoh – A Dream Come True in the forum General Discussions on Pain 8 years, 12 months ago
The winds pulling on the Lonoh and high waters sounds a bit scary. When that happens at the dock does the water become rough like it does out at sea? I image the Lonoh, you and Ms. Kitty being rocked side to side and waves. It made my day to read that your neighbors had you over for Christmas dinner, I don’t worry as much knowing you have someone…[Read more]
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Noki4 replied to the topic Ms. Kitty's World in the forum General Discussions on Pain 8 years, 12 months ago
I have been thinking about you and Bd with all the rain and storms that have been tossing around lately. I am so happy that Bd has you to look after him. Don’t worry about the picture and your tongue sticking out, I think you look beautiful in any pose. I cannot wait to hear more about the red bug Santa brought you, that sounds like fun.
Noki4
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Noki4 replied to the topic Ms. Kitty's World in the forum General Discussions on Pain 9 years ago
Hi Ms. Kitty,
To help start Ms. Kitty’s world off…I hope you don’t mind that I am sharing one of your photo’s aboard the Lonoh that Bd sent to me.
I look forward to seeing many more pictures of your adventures.Noki4
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TPC_YaYa replied to the topic Ms. Kitty's World in the forum General Discussions on Pain 9 years ago
Hello Ms Kitty,
It is a pleasure to meet you. We will look forward to reading more about your life with Bd and your adventures aboard the Lonoh and on the dock.
TPC Yaya
TPC Community Moderator
“The views or opinion(s) contained herein do not necessarily represent those of The Pain Community.” -
Noki4 replied to the topic What could be the problem? in the forum General Discussions on Pain 9 years ago
Hello,
I am so sorry to read the journey you are on. Chronic pain conditions can be hard to diagnosis and that is beyond frustrating for the person who lives with the pain. It is hard to make a treatment plan to help ease the pain if one does not know what is causing the pain. I do hope your healthcare providers are searching for the answers you…[Read more]
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TPC Admin wrote a new post 9 years ago
by Maggie Buckley and Carolyn Noel
1. “Just LET ME DO IT!!!”
Maggie – I remember an experience I had with my cousin while traveling in Las Vegas. She kept swooping in to carry my stuff, pick up my pur […]
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TPC_YaYa started the topic Dysautonomia – Autonomic Nervous System. in the forum General Discussions on Pain 9 years ago
Dysautonomia is a term used to describe multiple medical conditions that cause the malfunction of the Autonomic Nervous System. The Autonomic Nervous System is what controls the “automatic” functions of our bodies, the ones that we don’t think about, such as, heart rate, blood pressure, digestion, dilation and constriction of the pupils of the…[Read more]
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TPC_YaYa replied to the topic Fighting the good fight against arthritis pain in the forum Arthritis Pain 9 years ago
Having arthritis in my hands I have found gloves are an absolute must. Spring, Summer, Fall & winter, you can find me wearing gloves.
At my local CVS, I found white cotton gloves. The box calls them, Dermatological Cotton gloves and you get 2 pair in the box for around $5 dollars. They are great for helping to keep the medication on my hands.…[Read more] -
TPC_YaYa replied to the topic Caregiving As a Pain Management Tool in the forum Caregivers 9 years ago
FredFriend,
Our deepest sympathy for the loss of your friend. I love the sign tool idea. I cared for my in-laws for many years. My mother-in-law had diabetes. We came up with a word that she could say when she was having issues with low blood sugar. She didn’t have to worry about trying to explain what was happening, all she had to do was say…[Read more]
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TPC_YaYa replied to the topic The Log Book of Lonoh – A Dream Come True in the forum General Discussions on Pain 9 years ago
Bd,
We are happy to have you back. The journey of pain is one that is unpredictable. Sometimes before we even realize what is happening, it sneaks up on us to make sure we are still paying attention to it.
We look forward to reading more here about the Lonoh and Ms. Kitty and on the other forum, Mumblings of a Hermit.
TPC_YaYa
TPC Community…[Read more] -
TPC_YaYa replied to the topic new to web site in the forum Welcome to The Pain Community 9 years ago
Shadowbox,
Your words speak of hope and renewal. Two key things that we as people living with pain need to have close by in our lives.
The journey of pain is a long & hard road to navigate. We sometimes lock ourselves away from the world around us because pain can be and is dark, lonely, frustrating and over-whelming. We search to find the light…[Read more] -
Noki4 replied to the topic mumblings of a hermit in the forum General Discussions on Pain 9 years ago
Well said my friend…
I feel it is safe to say that we are all happy that she is no longer fighting the vicious cycles of chronic pain with the added demons of cancer pain.
At the same time, we want her back, we miss her, we want to chat with her on social media and in The Pain Communities chat room. We want her laughter, her humor, her support,…[Read more] -
Noki4 replied to the topic new to web site in the forum Welcome to The Pain Community 9 years ago
Hi, Shadowbox,
It is nice to meet you. I do wish it was under different circumstances. You are so right, we each have to find our way to accept what life has become while living with pain. Support is a very important key but it is up to the one living with pain to decide how to move forward or not to move forward. It is a struggle all the way. It…[Read more]
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Noki4 replied to the topic Looking 4 hope, 2 give & get support, & less shame in the forum Welcome to The Pain Community 9 years ago
Alexia,
I hope you received my message to you. I am sorry I did not see it earlier. If you look at the bottom of page when you sign in to chat, you will see a small icon with a number one in it. Click on that and you will be able to see our message box. Here on the site you can send private messages to members and I received the one you sent me.…[Read more]
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Noki4 replied to the topic Adhesion Related Disorder (ARD) & Complex Abdomino-Pelvic & Pain Syndrome(CAPPS) in the forum General Discussions on Pain 9 years ago
Dee,
So sorry it failed. I know how hard it is to get our hopes up that a treatment will work and then to have it fail. However, don’t give up…keep searching for treatments and keep coming back here to talk with us and receive support. You are not alone!
Take care,
Noki4 -
TPC_YaYa replied to the topic Looking 4 hope, 2 give & get support, & less shame in the forum Welcome to The Pain Community 9 years ago
Alexia,
Hello, it is nice to meet you but I do wish it was under better circumstances. We here at TPC are so very sorry that you have been shamed for living with pain.
The stigma that is out there is doing so much harm to people who live with pain. We are working to change the stigma so people living with pain are not shamed and are not put in…[Read more]
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