Christal4578

Hello Bravelittletess,

We want to start out by saying how sorry we are that you are on a pain journey. We want to welcome you to The Pain Community Family, we are here to help in whatever way we can and to let you know that “you are not alone” on this journey. We will be here for you to offer hope, compassion, support and connection to others who…[Read more]

Mjshawn17,

We are so sorry to read what you and your husband are going through. We are unable to give you any names for specific healthcare providers however have you tried searching for a new provider using the American Medical Association’s “doctorfinder”?

Here is the link, https://apps.ama-assn.org/doctorfinder/home.jsp

We do hope that this…[Read more]

Hi Willowwisp,

We are glad that you found us and we want you to know that you are not alone on this journey and we want to reach out and help you the best way we can.

It is very hard to keep one’s spirit’s up all the time when we live with pain. It is physically and emotionally draining on us.

I would like to share a couple different ways that…[Read more]

Welcome ToebeanS!
I hope that you look around the site and explore all of the great resources, references and blogs that are housed here. It is an amazingly supportive and informative group.
Hope to run into you again here soon.
FredFriend

Hi ToebeanS,

Welcome to The Pain Community discussion forums we are happy to meet you. We would like to invite you to check out our live hosted chats, Monday-Wednesday-Friday at 11am ET. The chat room is located under the “community” tab at the top of this page.

We also offer Outreach Support calls 4 times a month on Tuesday’s.

The call in…[Read more]

Well we are very happy that you and Bd made it through the storms.
You take good care of each other.

TPC YaYa
TPC Community Moderator
“The views or opinion(s) contained herein do not necessarily represent those of The Pain Community.”

Hi Barb,

No apology needed for making a long post. The forums here at The Pain Community are here for you. We want you to have a safe place to vent, ramble, to get support and to give support. We understand that it can be very difficult and frustrating to find the right words to use when we talk to healthcare providers.

We would like to invite…[Read more]

I think it is scary for those who are closet to us because they can fully see our health declining.
Also if they are close to us and see us all the time, the change can be dramatic from one day to the next and that can and is shocking for them.

You are right about the look in their eyes and us being able to tell from looking at them if they get…[Read more]

Ms. Kitty,

We understand that you are a big girl and can take care of yourself. Even so Bd is going to worry about you. We all worry about you so please do be careful when you are out roaming the docks of the bay.

TPC YaYa
TPC Community Moderator

“The views or opinion(s) contained herein do not necessarily represent those of The Pain Community.”

The cold has also began rolling in over the mountains here in WV. I understand the tight muscles and such. It has only just begun and I already feel like it is going right through the bones.

I think at some point we all feel exactly as you in regards to the question, are we okay. How does one answer that question when the answer is not…[Read more]

Hello Sarah4108,

It is nice to meet you, welcome to The Pain Community. I see that Noki4 mentioned the other resources that we have here on the website.

Our chats are at 11am ET on Monday – Wednesday – Friday and at 7:30pm ET on Thursday night.

The outreach support conference calls are 4 times a month and they are on Tuesdays.
The link below…[Read more]

I am so glad that your son got to come for a visit. We do tend to over-do when we have family or friends come for a visit.

Sounds like Ms. Kitty has gotten very comfortable with her surroundings and from reading her post on the other forum she has made a few friends (even though she would never admit that).

Our weather has turned cold at night…[Read more]

Awww Ms. Kitty we know you are a sweetie underneath the grumpy exterior. You are so kind to let them come aboard to visit from time to time.

TPC YaYa
TPC Community Moderator
“The views or opinion(s) contained herein do not necessarily represent those of The Pain Community.”

Bd,

Beautiful thoughts & insights shared with us, thank you 🙂

TPC_Yaya
TPC Community Moderator

“The views or opinion(s) contained herein do not necessarily represent those of The Pain Community.”

Welcome Snow,

I too have Hypermobility Type Ehlers-Danlos syndrome.

Finding the joy in each moment and my mantra “Keep moving forward” are at the top of my list of how to cope with the torturous pain. In some ways aging has made it worse and in others I think aging makes it better.

As I age (I’m over 50) I’m less fearful and less guarded so the…[Read more]

BD,
I’ve enjoyed your updates from the dock and am sorry to learn that the dock drama sucked you in such that you are suffering for it. I think you are coping beautifully and adapting to the changes around you as well as within yourself.

Living for Right Now is the thing that so many proponents of meditation and CBT are extolling as the primary…[Read more]

Hello MDMC and welcome to the discussions. Sounds like you have a good plan going. I include DARK chocolate in my pain management toolbox because of the many health benefits. A square or too in the late morning and/or early afternoon is a great way to inject a few moments of pleasure to distract from the pain. It is believed to be a natural…[Read more]

Hello Snow,

Thank you for sharing your pain journey with us. Gardening can be relaxing and as you said help keep our muscles strong. I enjoyed working in my many flower gardens over the years.

I would like to share with you that we have live hosted chats here on the website
every Monday-Wednesday-Friday at 11:00am ET. We have an evening chat on…[Read more]

Bd,

We at TPC would like to thank you for sharing your journey with us. Your writings share with all who read them the very truth of what a life of pain is all about. You inspire us to look for the beauty of each day while also allowing us to see that there is prep work for our unknown futures.
If we can help you along this journey please reach…[Read more]

Hello Mdmc,

Welcome to TPC. Sounds like you have a plan of attack in place to beat the pain back and that is fabulous.
We have a great group of folks here who truly understand this journey we call pain.

We have live hosted chats here on the website every Monday-Wednesday-Friday at 11:00am ET.
We have an evening chat on Thursday’s at 7:30pm…[Read more]