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Wendyli,

I am so sorry that you have had such a terrible journey. As a mother I would have done the exact same thing. Our children always come first. It is beyond frustrating that healthcare providers do not seem to agree with us.
I do not know how to help you find a new provider but I will be your friend, a shoulder to lean on.

I also would…[Read more]

Sounds like when the tidal surge is up it is best to stay on the Lonoh if possible so you do not have to climb to get back aboard. I think that AC is a fabulous idea for both you and Ms. Kitty. Not sure how it affects you but the heat in the summer is as bad as the cold in the winter for me. Don’t get me wrong I will take hot temps over cold and…[Read more]

I think it is important to stop and take a look at where I have been — where I am now — and where I am going.
Looking back can give me joy and anguish but it is the past and it is best to let the past be just that — the past.
Living in the here and now — the present — can be and is — very trying and frustrating and scary and downright crazy…[Read more]

I have to say I envy you and the life you have craved out for you and Ms. Kitty. I think the world would be a much nicer place if we all de-cluttered and down-sized our lives and lived more in the day rather then letting the demands of each day rule how we live.

Much love always
Noki4

Thank you Ms. Kitty…..I needed some laughter in my life today.

Noki4

Years ago we did not have the laptops and cell phones and life went on. Today however we find the technology allows us to reach out from the comfort and security of our homes to interact with others who live with pain and are on this journey.

It allows us to know that we are not alone. It is that ability to reach out that helps us to move forward…[Read more]

Hi Bd,

I totally agree with YaYa, so happy you have great dock mates and so happy to hear Ms. Kitty found her way back home. You are going to have to have a talk with her and find out her new sunning spots.

Take care
Noki4

Hi Sudsysuzy,

Nice to see you and meet you. I have found that by interacting here in the forums, on the chats and on the monthly support calls that it helps me a lot. It gives me the chance to share my pain journey with others in hopes of helping them and they help me.
Hope to see you around more often
Take care
Noki4

Hi Lizzben,

It is nice to hear from you. I wondered how things were going with you.
Thank you for sharing I have never heard of dry needling.

I took yet another fall yesterday on the steps leading to our basement. I am okay, just sore and bruised up
a bit. Several years ago when the falling started my primary care provider sent me to work…[Read more]

Puma,
We also had that plan to travel when he retires. He will turn 60 this year, so we have a few more years to go.
Plus we have hit a snag in the road so not sure that traveling will be in the cards. One of our daughters was given the diagnosis of cancer.
The insurance that she had through work turned out to be horrible. Lots of big co-pays…[Read more]

Hi Puma,

You sound just like me. Pain has been the third person in our relationship for 27 out of the 28 years we have been together. I have always tried to protect him. He is beyond wonderful, beyond supportive, beyond compassionate and he would fly to the moon if it could help ease my pain. Even though I know all of this, I have always tried to…[Read more]

Ms. Kitty,

I gasped when I read that you had a mis-step and went in to the water again. I am so happy that you are so smart and know how to get out of the water and back to BD so he can help you dry off.

Take care
Noki4

I am also on that journey of finding the “2016” me.

Each year, each month, each week, we find things changing when it comes to our pain and how it affects our life.
What I could do in 2015 has changed. The new year brings new restrictions, I really dislike that word, restrictions, but there is not a better one. It is what it is, I am restricted…[Read more]

I totally agree with what TPC YaYa shared. I have degenerative joint disease and I am bone on bone, no discs left. That makes it hard for me to bend and the reacher/grabbers are wonderful tools to have in our pain toolbox.
I have run in to the same issues, finding one strong enough, small enough to carry around and affordable.

To answer your…[Read more]

Glad to hear you and Bd are staying warm on the cold days and nights.

Noki4

I totally agree about walking helping to relieve some of our pain. Over the years I discovered for me that the longer I was down…the more stiffness and pain I had. I cannot run a race or walk miles or even several blocks but I can walk around enough to keep some of the stiffness and pain at bay.
There are days that walking is impossible due to…[Read more]

Excellence ideas. We all can benefit from adding different types of tools to our day to day toolboxes.

Noki4

BD,

I have heard you mention about writing down what the different pain levels mean to each of us. I think that is an excellent idea. After all we may have some of the same diseases/conditions/syndromes but the similarity stops there.
We each have different pain thresholds, different ways we interact with our pain levels. I have been meaning to…[Read more]

The winds pulling on the Lonoh and high waters sounds a bit scary. When that happens at the dock does the water become rough like it does out at sea? I image the Lonoh, you and Ms. Kitty being rocked side to side and waves. It made my day to read that your neighbors had you over for Christmas dinner, I don’t worry as much knowing you have someone…[Read more]

I have been thinking about you and Bd with all the rain and storms that have been tossing around lately. I am so happy that Bd has you to look after him. Don’t worry about the picture and your tongue sticking out, I think you look beautiful in any pose. I cannot wait to hear more about the red bug Santa brought you, that sounds like fun.

Noki4