Sharon B.

Before being diagnosed with multiple autoimmune disorders and conditions, explaining my pain levels to a healthcare provider was easy. If I had a sprained wrist or a broken bone, they could see the injury. Using […]

When did it become acceptable to treat people with chronic illness and pain as if they did something to deserve what is happening to their lives?

When did it become acceptable for healthcare providers to […]

I recently had the pleasure to be on a telephone support call for people with pain. Since I also live with pain I know how it helps to talk directly to others who truly understand what a day is like in the life of […]

Part 1

Responses to What’s Your Pain IQ, revealed a gem; over a quarter missed which healthcare providers treated pain. It is often confusing about who could, should and does treat pain. In order to provide c […]

(Written with Teresa’s grandson)

Many of us have had to deal with the fact that we live with pain. We’ve had to accept that our pain has stolen from us: our energy levels, our careers and sometimes family and […]

I have lived with pain for half of my lifetime and I will live with pain until I die. Living with pain due to an illness, disease or syndrome and utilizing pain medications as a part of my pain treatment does not […]

Ok, we all know what a life with pain is like. We hurt, we have stiffness, we have aches and we go about our days dealing the best we can….until the dreaded winter cold and flu season hits. Oh boy, look out! You […]

Many years ago I went moseying around the internet to search out others who lived with daily pain. I wanted a support system to help me – I was looking for a support group. There were no local ones in my area or […]

Here is what I am thinking. When living with pain how do we live in the day? How can we find the strength to face each day with a smile? How do we make sure we are moving forward each day?

These are all […]

Recently I read an article titled, “Drug-Test Physicians? Docs Say ‘No Way”. I was lost for words.  I could do nothing but sit and shake my head. Then, I wanted to scream so loud that all the physicians who were […]

This is the final entry of a three part series (part one | part two) that I have written regarding the stigma that we as people living pain face daily. I have lived with pain for nearly half of my lifetime. I […]

I recently wrote a blog titled, Enough is Enough! Stop the Stigma Against People Living with Pain. This is the second entry sharing the frustration that I, along with other people living with pain, face every day. […]

It seems like just about every media article talking about pain medications has become a feeding frenzy which reports one side of the story. They take advantage of the uninformed and promote fear with biased and unsubstantiated claims that everyone who is prescribed an opioid medication has or will become addicted to the medications. They feed into the fear that if you have a loved one or friend who is prescribed one of these medications then you had better watch them closely because once addicted they will steal, cheat and lie to get their “fix.” This, my friend, is propaganda [information which is biased or misleading nature and used to promote or publicize a particular political cause or point of view].

I am so sick of reading these articles. I am so angry at all those who continue to suggest, promote and endorse these types of stories to the media in an attempt to influence and sometimes brow beat government agencies and politicians to legislate tougher laws and regulations. They claim “their cause” is to address prescription drug abuse to prevent overdose and death, but their methods are short sighted. The so-called “un-intentional” consequence, to me, seems quite intentional. Why put the onus of substance abuse on people living with pain? We did not create this public health problem nor are most of us misusing, abusing or selling our pain medicine. We are too busy trying the best way we know how to live a worthwhile life with another public health problem—the undertreatment of pain! Why make it harder for the legitimate person with pain to obtain an effective medication needed to lessen their daily agony? Why scare our doctors out of wanting to help treat us? Don’t we have a right for some sense of normalcy in our lives?

You notice there is a lot of information missing from these articles. There is no mention of how pain medications allow some people living with pain to have functional lives. There is no mention of how pain medications allow some people living with pain to continue to work. There is no mention of how pain medications allow some people living with pain to have quality in their life.  We want nothing more than to have our pain treated in a manner that allows us to live our lives just like people who have other chronic medical conditions, like heart disease, diabetes, cancer and so on. As with any chronic disease, it is not all about taking medications. As with other diseases, when you have chronic pain, it means a full treatment plan is required to help lessen the pain and regain function.  People with pain often use exercise, physical therapy, water therapy, massage and so much more. It is NOT just a pill for every ill.

When someone reads one of these poorly researched and unbalanced articles, I can imagine that they start thinking about a family member or friend who lives with pain. Then, they may question whether that person has real or legitimate pain. I know readers must think that if you are taking an opioid pain medication for pain that you must be addicted to them. It’s no wonder; the definition of addiction as compared to physical dependence is often confused as one in the same and this is incorrect. This information is often touted and reinforced by so-called experts who know little about pain and its management and incorrectly equate pain treatment as all about the medications prescribed.

Please allow me to enlighten those of you who do not know the difference between tolerance, dependence, and addiction. These definitions have been recommended by respected medical societies, like the American Academy of Addiction Medicine (ASAM), the American Pain Society (APS) and the American Academy of Pain Medicine (AAPM).

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Tolerance – Tolerance refers to a situation where a medicine becomes less effective over time. (Your body adapts and gets use to it.)
Dependence – Dependence means that a person who has been taking a medication for a long period of time can develop symptoms of withdrawal if the medication is suddenly stopped, the dose is lowered too quickly or another medication is given that reverses the effects. (Your body adapts and gets use to it.) This effect can happen with many medications not just pain medications, like steroids, certain heart medications and anti-depressants.
Addiction – Addiction is a primary, chronic disease of brain reward, motivation, memory and related [nervous system] circuitry (ASAM).  It is a condition where there is craving for this substance, the compulsive use despite harm, and impulse control loss of how they use the medication. The person does not care that they are harming themselves or others; they will do whatever it takes to obtain medications. They will engage in unacceptable and unsafe behaviors.

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If you have a past history or current history of substance abuse the chance you will develop a problem taking opioid medications is higher than someone who does not have that history. Your level of risk should be considered before opioids are recommended. Yet, with open communication and close monitoring by your health care professional, even those at higher risk can take these pain medications more safely.

It is important to emphasize that no matter what your circumstance that these medications can be prescribed appropriately by knowledgeable clinicians and you take the medication safely if you do so as directed and report any problems immediately.

So how do we change this growing stigma against people living with pain? How do we fight back?

We get out there and enjoy our lives. We get out and do what we want to do, when we want to do it. We don’t let the fact that we use a cane, walker, crutches, wheelchair and other medical devices define us as part of the problem of drug abuse.
We stay informed and share our knowledge. When a friend or family member questions about addiction, we make sure we can give them facts and direct them to reliable resources.  We must stop all the myths that are out there.
We must fight back with truth. Get angry and use that energy in a positive way. Take the time—NO, MAKE THE TIME and read what is published by the media. Comment back. Give them the facts and remind them of the harm they are contributing to by fueling distortions and misconceptions. Make them learn the other side of the story; offer to be interviewed, submit a letter to the editor, write a blog—take them to task.

Together we can make a change for the better. We can help stop this feeding frenzy that is making our lives with pain much more difficult than it has to be. If we don’t, who will?