Dionetta Hudzinski

  • Part 2 of 4 – Read Part One

    I have to start out by saying that I am not a doctor, nor am I chemist or herbalist. I’m just an average person who has been exposed to lots of media reports and social c […]

  • David, I am not quite sure what you mean by your comment. Can you clarify? Are you making a general comment? or are you commenting on the blog article?

  • I spell it BDCGT!

    Neuropathic pain (pain generated from the spine or nerve fibers) comes in a variety of forms and can be located anywhere on the body. It can be the result of pinched or damaged nerves […]

  • Part 1 of 4 – Read Part 2

    by Dionetta Hudzinski MN, RN

    The issue of marijuana use has been around for most of my lifetime and it is not going away.  Since 1996, laws in 23 states have been enacted to give […]

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    by Deborah Ann with Dionetta Hudzinski

    Deborah Ann is an artist by profession and my friend of many, many years.  We have traveled our pain journeys together.  We share our frustrations, pain relief ideas […]

  • ThumbnailHave you ever noticed the effect the changing seasons have on how you feel?  Have you noticed that on gray overcast days your energy levels drop dramatically?  Do you feel more depressed in the winter than in the […]

  • Hi, Pipboy and Noki4, I love to play bubble witch and crush mania and jewel Mania. I can mindlessly play and distract myself on a day or evening I am having increased pain. I have a tablet or use my phone to access them so it does not take much effort and I do not need to sit in front of my computer. I am not skilled enough to play some of the…[Read more]

  • Noki, I applaud you for choosing your friends over a cigarette. And happy to hear you continue to try to quit.

  • Petmom, I read your post and identified so much with what you were going through. I used to say oh its OK…I’m fine… But I clearly was not OK and would suffer through it knowing that I would get a headache afterwards and if we were eating and they lite up I would get stomach cramps. And I hated the smell. So after much thought and talking to a…[Read more]

  • Plateaus can be frustrating but they are a fact of life. With time and patience the weight loss will continue. Just keep doing what you have been doing to get to this point. AND know you are not alone…we are cheering you on.

  • Dionetta Hudzinski posted a new activity comment 5 years, 10 months ago

    I’m singing Teresa can you hear me?
    Great Blog! You nailed it! Fair is fair – no matter who or what group you talk about. I can not believe their excuses for not being drug tested. Nurses are randomly tested all the time. Tested on new employment, tested randomly, tested if there is cause to suspect a problem.

    I get the reports for MQAC…[Read more]

  • Dionetta Hudzinski posted a new activity comment 5 years, 10 months ago

    Me I sleep on my Left side in a pretty tight fetal position. I roll over onto Right side and onto back frequently during the night due to pain that wakes me up. A good night is to fall asleep in one position and wake up 5-6 hours later in same position. that is when I say “thank you God for a good night!” I also deal with restless leg syndrome.…[Read more]

  • Dionetta Hudzinski posted a new activity comment 5 years, 10 months ago

    Micke, great info. thanks

  • Dionetta Hudzinski posted a new activity comment 5 years, 10 months ago

    Nick – see blog https://paincommunity.org/old-pain-medications-new-rules/
    It explains what happened.

  • Dionetta Hudzinski posted a new activity comment 5 years, 10 months ago

    Micke, as frustrating as it is we need to continue to stand up and shout. This past 4 months I have received 4 calls (3 in the past 2 weeks) from people in pain in WA state who need help finding resources. They find me through the Seattle times article…they write to Elin and then she refers to me. we are now banding together to approach the…[Read more]

  • Dionetta Hudzinski posted a new activity comment 5 years, 10 months ago

    Noki4, thank you. Glad you thought it was worth reading. I can not tell you how upset I was as I tried to advocate for this guy and I felt like I was doing what I do when I encounter biased people who think anyone in pain is lazy and not worthy of pain relief.
    I want to be around when (God forbid) they are smitten with chronic pain…or even…[Read more]

  • Dionetta Hudzinski posted a new activity comment 5 years, 10 months ago

    Nickopedia, the situation that you mention is not unique to West Virginia. That was a decision that came from the FDA and it is a national law/rule now for ALL states. Is it fair? NO. Did it make getting your medications harder if not down right difficult to impossible? YES.
    So what are we to do? Whining helps no one. Taking action does!…[Read more]

  • ThumbnailAs I sat in the jury room listening to my fellow jurors deliberating the case before us, I was suddenly struck with the similarities to how some people with pain are talked about and treated.  Before us was a case […]

    • Now, how do we stop this discrimination?

      • Micke, as frustrating as it is we need to continue to stand up and shout. This past 4 months I have received 4 calls (3 in the past 2 weeks) from people in pain in WA state who need help finding resources. They find me through the Seattle times article…they write to Elin and then she refers to me. we are now banding together to approach the Seattle times to see if they will do a follow up to the pain rules 4 years later to see where we are. Some state officials are proud of the fact that prescriptions are decreasing and also they are denying more applications for prescriptive authority saying they are concerned for the safety of the general public. Just saw they refused to grant an extension and broadening of prescriptive authority to Naturopaths. reason: we can not increase the providers who are prescribing controlled medications if we want to stem the prescribing of opioids in WA state. WHAT??? Same old BS.
        It is frustrating when I read the reports of MD’s and Nurses who are abusing drugs and losing their licenses in WA state. Every month I get the report…and it sickens me to see the numbers. How do we fight this? Education…REAL education!! get some pain patients on a panel and do a dog and pony show.
        The Moms of kids who have died of overdoses get to do it…why can’t we??? Put a REAL face on it.
        Frustrating for me as right now I am dealing with my own pain as well. Thought I really understood chronic pain until Sept 2013 when my life went upside down and sideways. Post viral seronegative arthritis.Received the official diagnosis today. My hands and wrists are the worst so typing is now a real chore. No rheumatologist in this part of the state so I will have to go to Seattle. I am finding that resources for people in pain are scarcer than ever. Pain clinics are so overwhelmed it takes an act of congress to get an appointment in less than 6 months if they will see you at all.
        There are some very compassionate physician out there but they are far and few inbetween. I am lucky I have a team that is very patient centered and concerned about how the pain is affecting my life. They listen, They give me just about anything I ask for. The meds are carefully prescribed each month with careful follow up. I even got a flare up plan written in my chart. they all know me from my days as the pain management nurse at the hospital. In those days they dreaded seeing me…they’d say oh no here she comes…how are our patient’s doing? or they’d call me and ask me to come do that thing that I do. (i.e. help their patients get relief from the pain using multimodal techniques) I am still know affectionately as the Pain Lady by many.

    • Dionetta this is an outstanding blog. People living with pain are not only held to higher standards but there are many healthcare providers and folks in the general public who judge us all to be addicts. They do not take the time to learn about pain and/or refuse to believe that we must utilize pain medications to help us to have some normalcy in our lives and quality of life.

      • Noki4, thank you. Glad you thought it was worth reading. I can not tell you how upset I was as I tried to advocate for this guy and I felt like I was doing what I do when I encounter biased people who think anyone in pain is lazy and not worthy of pain relief.
        I want to be around when (God forbid) they are smitten with chronic pain…or even acute pain that is not relieved. I want to say…see what did I tell you…can you understand NOW!! but actually when I WAS faced with that very situation I could not not do what I do for anyone in pain…I worked diligently for several hours to get the pain under control without judgement, without an attitude, without poking fingers. I just did my job as compassionately as I could. The next day I had the conversation as he (an ortho Doc who just had major – very painful surgery) sat in bed and said to me “I was never so glad to see you in all my life” I told him to NEVER forget this. of course he did some time down the road AND I, true to my nature reminded him of his ordeal in the recovery room when he was ashen colored, white knuckling it, and asking- no begging for relief.
        He who thought that 2 tylenol after a hip or knee replacement what sufficient for “most” people. “I fixed the problem so they should have less pain” ARE YOU KIDDING ME? Let me take a saw and saw off your joint…then take a hammer and chisel to implant the new hip or knee joint. Let me see if this hurts???

    • It has moved beyond discrimination and into legislation in West Virginia. West Virginia has passed laws to reclassify drug schedules of federally scheduled drugs into different classes. Tramadol, a non-narcotic has been moved into the same class as Oxycotin. Today, I was told that Hydrocodone was reschedule as well. This means I will have to get a new prescription every month in stead of every three months. I now have to pay for 12 doctor visits instead of 4. It’s egregious and excessive as well as a financial burden. I will also have random calls to report the amount of medication in my prescription bottles. The only way to fight against this abuse is legally in West Virginia. It will be nearly impossible to repeal.

      • Nickopedia, the situation that you mention is not unique to West Virginia. That was a decision that came from the FDA and it is a national law/rule now for ALL states. Is it fair? NO. Did it make getting your medications harder if not down right difficult to impossible? YES.
        So what are we to do? Whining helps no one. Taking action does! Write to your legislators both state and federal. Tell them your story. encourage others to tell their stories. Help someone else tell their story. Keep telling the story until someone listens. Flood their offices with weekly letters, phone calls, emails actually work the best as Snail mail scares them and we sure do not want to scare them.
        keep track of times that you are told untruths about prescriptions. dates, times, who. Keep track of conversations you have had with others in similar situations…again dates and names and contact info. It will come in handy to back up your story.
        Where one person in pain is discriminated against there are more than a 1000 more who have not spoken up, who remain silent; who may be scared to speak up for fear of retaliation even greater than their present situation. But I ask what could be worse than being in pain and then being singled out for discrimination, care that is less than quality or effective.
        team with others in your town…do a meetup… talk to others; spread the word. write a letter to the editor.
        make comments on all negative media…let them know the truth.

      • Nick – see blog https://paincommunity.org/old-pain-medications-new-rules/
        It explains what happened.

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