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December 9, 2015 at 12:52 pm #24615pipboyParticipant
Tasha,
I am sorry to hear that this person’s family is not there to help you. Being a caregiver is a very hard job. Many people do not realize just how hard it can be. We as the caregivers want nothing more than to help our loved ones or friends to live a life of quality.
Depending on what the diagnosis is for your friend/neighbor there may be local support for them as well as you, in your area. You mention that she yells loudly at all hours and has been kicked out of hospitals, have you spoken to her healthcare providers about this behavior? You obviously care for this person and are worried about her and I would hope that her healthcare providers can see that and will help you find some answers to the issues you are having with her.
Being a caregiver myself, I have from time to time lost my patience with my loved one. It isn’t that we don’t want to care for them, it just can be very frustrating when we as the caregivers have tried many different approaches and none of them work.
Please know that you are not alone.
Pipboy -
June 18, 2015 at 7:30 pm #7470pipboyParticipant
I have to say as a caregiver this really gets my blood pressure elevated. No one has the right to question any of you. I have been with my wife when she has been confronted. I must admit if it wasn’t for her wanting to educate people on invisible disabilities, I would have given them a good talking too on how rude and disrespectful this is.
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June 18, 2015 at 7:15 pm #7469pipboyParticipant
I have been following your journey and I gotta say, wow! As a caregiver to the wife who lives with pain we have over the years found ourselves changing the game plan due to pain. It is outstanding that you were able to do what you set out to do.
Fair winds and following seas from an old navy sailor.Pipboy
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March 25, 2015 at 1:27 pm #5672pipboyParticipant
I saw your post on the TPC facebook page and wanted to stop by and share how volunteering had a huge impact for my significant other.
She never let the pain own her, she fought back hard. She refused to give up but there was still something missing in her life.
She found that she was also good at helping other people who lived with pain, like Noki4 mentioned.
I saw such a huge change in her outlook on life. She was smiling more, she would get so excited talking about her volunteer time that she would talk so fast I would have to tell her to slow down.
I do not live with pain, I am her caregiver and partner in life. She lives with pain and I can testify that finding a way to make the pain journey positive was so good for her.
Pipboy (caregiver)
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