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December 11, 2015 at 11:17 am #24856deepParticipant
WELL JUST WANTED TO LET YOU KNOW THAT THE TRIGGER POINT INJECTION TO STOP THE PELVIC NERVE PAIN DID NOT TAKE AFFECT AFTER ALL. I’M STILL BURNING. IT’S REALLY THE NERVE DAMAGE THAT’S GETTING TO ME ;(
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November 27, 2015 at 10:55 am #23103deepParticipant
HELLO OUT THERE, I WANTED TO GIVE YOU AN UP-DATE ON THE TRIGGER INJECTION I AGREED TO HAVE LAST WEEK IN MY GROIN AREA HAS HELPED ! I WENT UNDER SEDATION, FROM THE FEAR OF THE PAST INJECTIONS FOR MY NERVE DAMAGE CAUSED BY SURGERIES. BUT I’M GLAD I DID IT AND I’M IN LESS PAIN AND BURNING WHEN I SIT NOW. (THANK GOD). I SWORE I WOULD NEVER HAVE ANOTHER TRIGGER POINT INJECTION INTO MY NERVES BUT, I NEEDED HELP !!! AND I’M GLAD I BRAVED IT OUT. NERVE DAMAGE IS SUCH A BIG DEAL IN ALOT OF US, AND IT’S SO HARD TO DEAL WITH….. DON’T YOU AGREE ???????? DEE
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November 20, 2015 at 1:12 pm #22247deepParticipant
THANK YOU SO MUCH FOR BEING THERE
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November 20, 2015 at 1:06 pm #22246deepParticipant
HELLO TO YOU ALSO, THANK YOU FOR RESPONDING. I SUFFER FROM JUST ABOUT THE SAME THING AS YOU BUT THE ENDROM. GENE ISN’T FOUND IN MY RE-OCCURRING ADHESIONS. BUT THEY HAVE BEEN REMOVED 8 TIMES NOW. ALONG WITH SOME ORGANS. I’M SORRY TO HEAR ABOUT YOUR CONDITION.. HOW MANY SURGERIES HAVE YOU HAD TO HAVE ? DO YOU SUFFER FROM NERVE DAMAGE IN YOUR BELLY BUTTON AREA? RECTUM ? GROIN ? OVEREY AREAS. BURNING ? PINCHING ? STABBING? SHARP SHOTS? STOMACH LOCK UPS? CRAMPING? DEPRESSION? HOW LONG HAVE YOU HAD THIS DISORDER? DEE
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November 20, 2015 at 12:49 pm #22245deepParticipant
HELLO, MANY OF US WITH MULTIPLE ADHESION RELATED SURGERIES I THINK ADVENTUALLY WILL SUFFER FROM SOME TYPE OF RELATED DISORDERS. NERVE DAMAGE WITH NERVE PAIN , WEAKNESS IN THE LEGS, SWELLING OF THE BELLY, SORE BOWEL MOVEMENTS. PAINFULL INTERCOURSE , NUMBNESS, PINS AND NEEDLES. PULLING, AND THEN DEPRESSION, ALL OF THESE THINGS SHOULD HAVE A PLAN IN WOMEN WITH HISTORY OF REPEATED ABDOMINAL SURGERIES. CRISIS HITS AT THE END OF ALL LOT OF US SUFFER-ERS. AND ISULATION. AND THATS WHERE CAPPS COMES IN, IT SHOULD OF NEVER GONE THAT FAR. I WAS READY TO JUMP (WELL I TOLD THE DOCTOR I COULD JUST JUMP OFF HIS HOSPITAL) , I F I COULDN’T GET THIS PAIN UNDER CONTROL, AND THERE’S THE CRISIS. BUT NOW I HAVE A TEAM A STARTING A MEDITATION PROGRAM AND PLAN TO MEET BONNIE, I’D LIKE TO STRENGTHEN ANY SUFFER-ER OUT THERE I CAN WHO HAS BEEN IN THE DARK WITH THESE DISORDERS I JUST FOUND OUT MY LONG TERM ISSUES HAVE A NAME. (ARD ) AND (CAPPS)
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November 17, 2015 at 11:20 am #21872deepParticipant
THANK YOU SO MUCH FOR BRINGING THIS ISSUE TO LIGHT, I’M A (ARD) AND A ( CAPPS) SUFFER’ER FOR 30 PLUS YEARS NOW, WITH 8 ABDOMINAL SURGERIES UNDER MY BELT, AND JUST TODAY,I WENT FOR ANOTHER TRIGGER INJECTION UNDER SEDATION, FOR NERVE PAIN AND DAMAGE, THESE LONGS YEARS OF SURGERY AND MEDS I CAN’T TAKE, AND INJECTIONS I DON’T REALLY BELIEVE THAT WORK, HAS BROUGHT ME TO SOME VERY DARK PLACES. AND THIS IS WHY IT IS IMPORTANT TO ME TO BRING THIS ISSUE UP, I HIT A CRISIS POINT A FEW WEEKS BACK AT THAT DOCTOR’S OFFICE, AND A TEAM WAS CALLED IN, I WAS SO SCARED !!! WELL AFTER GOING HOME THAT DAY, I WENT ON THE COMPUTER AND FOUND THAT MY CRISIS COULD OF BEEN AVOIDED IF I WAS AWARE OF WHAT I WAS SUFFERING FROM (ARD) AND (CAPPS) WHICH HAS NEVER BEEN MENTIONED TO ME IN ALL OF THE YEARS OF MY SUFFERING !!! THIS SUBJECT IS TOOOO HUSH HUSH, AND I’M READY TO TALK ABOUT IT. DEE
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November 14, 2015 at 3:02 pm #21498deepParticipant
hello, i not sure if any of my attempt went threw for a new topic i tried several times but din’t see the postings, i may need help, i would like to see a new forum on ARD and CAPPS adhesion related disorders, and it’s effects. it’s a n issue that’s been too hush hush too long. i am a suffer’er of about 32-33 years now with eight abdominal surgeries and now left with nerve damage every-where. this put me in a crisis state a few weeks ago, in the doctors office, and if i knew more about ARD andCAPPS i might of been more pre-pared for the breakdowns. i. know i’m not alone out there. there’s many in my shoes, and i’m willing to pull strength from them as well as they can pull it from me. please make sure my topic goes in, thank deep (darlene
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