411health

  • Plateaus can be frustrating but they are a fact of life. With time and patience the weight loss will continue. Just keep doing what you have been doing to get to this point. AND know you are not alone…we are cheering you on.

  • Just spent a long weekend with an old friend who turns out to be a chain smoker. My lungs and clothes had a work out just being around her as she smoked in her home, in the car and elsewhere. She did ask if I minded, so I was trying to be gracious as she invited me to her home. Naturally, I say I was fine with it. I did not expect to be living in…[Read more]

  • 16 pounds lost and hit my second stalemate. So frustrating. I hate these as they can make you want to throw your hands ups and give up. I am determined not too!

  • ThumbnailAs I sat in the jury room listening to my fellow jurors deliberating the case before us, I was suddenly struck with the similarities to how some people with pain are talked about and treated.  Before us was a case […]

    • Now, how do we stop this discrimination?

      • Micke, as frustrating as it is we need to continue to stand up and shout. This past 4 months I have received 4 calls (3 in the past 2 weeks) from people in pain in WA state who need help finding resources. They find me through the Seattle times article…they write to Elin and then she refers to me. we are now banding together to approach the Seattle times to see if they will do a follow up to the pain rules 4 years later to see where we are. Some state officials are proud of the fact that prescriptions are decreasing and also they are denying more applications for prescriptive authority saying they are concerned for the safety of the general public. Just saw they refused to grant an extension and broadening of prescriptive authority to Naturopaths. reason: we can not increase the providers who are prescribing controlled medications if we want to stem the prescribing of opioids in WA state. WHAT??? Same old BS.
        It is frustrating when I read the reports of MD’s and Nurses who are abusing drugs and losing their licenses in WA state. Every month I get the report…and it sickens me to see the numbers. How do we fight this? Education…REAL education!! get some pain patients on a panel and do a dog and pony show.
        The Moms of kids who have died of overdoses get to do it…why can’t we??? Put a REAL face on it.
        Frustrating for me as right now I am dealing with my own pain as well. Thought I really understood chronic pain until Sept 2013 when my life went upside down and sideways. Post viral seronegative arthritis.Received the official diagnosis today. My hands and wrists are the worst so typing is now a real chore. No rheumatologist in this part of the state so I will have to go to Seattle. I am finding that resources for people in pain are scarcer than ever. Pain clinics are so overwhelmed it takes an act of congress to get an appointment in less than 6 months if they will see you at all.
        There are some very compassionate physician out there but they are far and few inbetween. I am lucky I have a team that is very patient centered and concerned about how the pain is affecting my life. They listen, They give me just about anything I ask for. The meds are carefully prescribed each month with careful follow up. I even got a flare up plan written in my chart. they all know me from my days as the pain management nurse at the hospital. In those days they dreaded seeing me…they’d say oh no here she comes…how are our patient’s doing? or they’d call me and ask me to come do that thing that I do. (i.e. help their patients get relief from the pain using multimodal techniques) I am still know affectionately as the Pain Lady by many.

    • Dionetta this is an outstanding blog. People living with pain are not only held to higher standards but there are many healthcare providers and folks in the general public who judge us all to be addicts. They do not take the time to learn about pain and/or refuse to believe that we must utilize pain medications to help us to have some normalcy in our lives and quality of life.

      • Noki4, thank you. Glad you thought it was worth reading. I can not tell you how upset I was as I tried to advocate for this guy and I felt like I was doing what I do when I encounter biased people who think anyone in pain is lazy and not worthy of pain relief.
        I want to be around when (God forbid) they are smitten with chronic pain…or even acute pain that is not relieved. I want to say…see what did I tell you…can you understand NOW!! but actually when I WAS faced with that very situation I could not not do what I do for anyone in pain…I worked diligently for several hours to get the pain under control without judgement, without an attitude, without poking fingers. I just did my job as compassionately as I could. The next day I had the conversation as he (an ortho Doc who just had major – very painful surgery) sat in bed and said to me “I was never so glad to see you in all my life” I told him to NEVER forget this. of course he did some time down the road AND I, true to my nature reminded him of his ordeal in the recovery room when he was ashen colored, white knuckling it, and asking- no begging for relief.
        He who thought that 2 tylenol after a hip or knee replacement what sufficient for “most” people. “I fixed the problem so they should have less pain” ARE YOU KIDDING ME? Let me take a saw and saw off your joint…then take a hammer and chisel to implant the new hip or knee joint. Let me see if this hurts???

    • It has moved beyond discrimination and into legislation in West Virginia. West Virginia has passed laws to reclassify drug schedules of federally scheduled drugs into different classes. Tramadol, a non-narcotic has been moved into the same class as Oxycotin. Today, I was told that Hydrocodone was reschedule as well. This means I will have to get a new prescription every month in stead of every three months. I now have to pay for 12 doctor visits instead of 4. It’s egregious and excessive as well as a financial burden. I will also have random calls to report the amount of medication in my prescription bottles. The only way to fight against this abuse is legally in West Virginia. It will be nearly impossible to repeal.

      • Nickopedia, the situation that you mention is not unique to West Virginia. That was a decision that came from the FDA and it is a national law/rule now for ALL states. Is it fair? NO. Did it make getting your medications harder if not down right difficult to impossible? YES.
        So what are we to do? Whining helps no one. Taking action does! Write to your legislators both state and federal. Tell them your story. encourage others to tell their stories. Help someone else tell their story. Keep telling the story until someone listens. Flood their offices with weekly letters, phone calls, emails actually work the best as Snail mail scares them and we sure do not want to scare them.
        keep track of times that you are told untruths about prescriptions. dates, times, who. Keep track of conversations you have had with others in similar situations…again dates and names and contact info. It will come in handy to back up your story.
        Where one person in pain is discriminated against there are more than a 1000 more who have not spoken up, who remain silent; who may be scared to speak up for fear of retaliation even greater than their present situation. But I ask what could be worse than being in pain and then being singled out for discrimination, care that is less than quality or effective.
        team with others in your town…do a meetup… talk to others; spread the word. write a letter to the editor.
        make comments on all negative media…let them know the truth.

      • Nick – see blog https://paincommunity.org/old-pain-medications-new-rules/
        It explains what happened.

  • Big projects around the home like remodeling can be a big adventure for those that do not live with pain….so how does one manage to accomplish these adventures while living with pain? Please share your experiences and tips about remodeling and other home projects.

  • Oh no Petmom…:( but did you have a good time? was it worth it? do not get discouraged. You can do one of 2 things…sit and analyze the weekend and what you might have done differently to stay on track and still have fun…or you could just chalk it up to a good time and start over today with a renewed sense of determination.

  • Petmom…I am with you on that. Water is one of the best vehicles for exercise, relaxation etc. Love the feeling of weightlessness. AND I think this is one of the many therapies we need to work on getting more available to people in pain. it is a relatively cheap therapy when you look at the cost of others that do not work as well.
    Where would…[Read more]

  • Wow, how frustrating to hear. I found that water yoga was a powerful experience. The water is warm and getting into the poses were much easier when not working against gravity. The relaxation and breathing at the end (using water noodles) was the best part. Placing one under your neck and armpits with the other under your knees allows you to be…[Read more]

  • Tender, you are an inspiration and a gentle soul. I enjoy chatting with you during the week. I am finding that when I cannot jump online, I miss those chats. Everything seems possible. I hope others will join in the conversation and find the solace that I have found with my new chat friends.

  • Ok, color me frustrated. I gained 2 pounds just from taking the weekend off and spending time with friends whom I have not seen for months. This is just plain WRONG.

  • Thank you Dionetta. I choose wisdom and generosity of spirit which you have shown writing this important message and sharing your thoughtful words.

  • ThumbnailWords are the building blocks of language.  We use words to communicate our thoughts, ideas, beliefs and emotions.  Words can have specific meaning or a variety of meanings depending how they are used in […]

  • That is so true. It took years to get here -to this point in time. It certainly did not happen overnight. Sometimes it seems that way when we actually “wake up” to the fact of our present circumstances. And as much as we would like to turn back the clock and weigh what we did 10 or 20 or 30 years ago; it it just is not going to happen…[Read more]

  • Thanks Petmom, I try not to focus on the number…rather focus on how I feel and when others make comments Like -WOW you look like you are losing wt! I say thank you I feel better. And I only weigh in monthly at my clinic appts. (I do not own a scale) Funny I have been to the clinic more in the past 6 months that I have been in the past 6+…[Read more]

  • Bravo, Dionetta! Take it slow and allow the weight to melt away. It seems frustrating at times, but each day that your clothes loosen just a little more, is proof that you will reach your goal. I hope to drop at least 40 pounds over the next year. I try not to use that as the daily metric though to avoid becoming disillusioned. I am choosing…[Read more]

  • one of our Physical therapy offices has a heated pool for aquatic exercise and water walking. After My recent pain episode I was referred to them and I really saw the benefit of the nice warm heated pool. the Athletic club is OK…not as warm because of the swim teams that use the facility…so they keep it cooler for them but after you get to…[Read more]

  • Yay – Petmom!! Don’t think the canine companion would fly at the pool. Here in Yakima – when the Pool closes for the season and before they drain the pool they have a canine fun in the pool day. anyone with a canine pet can bring them for a dip in the pool.

    BTW I am down 4 lbs since Mid May. only 25 more to go!!

  • He doesn’t call me “Brat” for no reason. LOL

  • I wonder if I could sign up a group membership and have my canine crew doggie paddle along side of me. LOL! Great suggestion, Dionetta. I wonder what is working for others. I had good news stepping on the scale this morning–now 12 pounds lighter.

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