Ehlers-Danlos Syndrome

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      I was lucky to be diagnosed at age 13 with Ehlers-Danlos Syndrome (EDS) by a doctor who also had it. Since then I’ve heard of lots of people that weren’t diagnosed until adulthood after their bodies had been damaged by accidental injuries or prescribed treatments gone awry. Connective tissue disorders are complex and I think they are under-diagnosed because the pain, irritation or injury that motivates an individual to seek medical care becomes the sole focus of treatment. I consider myself lucky to have had the early diagnosis for doctors to consider in treating each injury. This got me wondering if other people also feel “lucky” when they get a diagnosis.

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