Hi Ynevar,
I have Ankylosing spondylitis and it is sad that your insurance seems to disregard the facts that you do not have to be HLA-B27 positive to have AS. A majority of the people with this marker never contract ankylosing spondylitis.
I understand that our healthcare providers are busy and backlogged but that is no excuse to not fight our insurance providers when we need a treatment that gives us some of our life back.
If you get the chance you should check out the support calls that TPC now has. There are 4 calls a month and it is a great place to share our struggles and to offer each other support.
Take care,