Reply To: Ehlers-Danlos Syndrome

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Great new resource created in the UK:

“The Royal College of General Practitioners (RCGP) has launched an Ehlers-Danlos syndromes (EDS) toolkit for GPs and healthcare professionals. The toolkit, created in partnership with EDS UK and funded by the charity, aims to improve the recognition, response to and management of EDS in primary care.

The toolkit sets out the latest thinking in EDS, including the new approaches to diagnosis and treatment set out by the International Consortium on the Ehlers-Danlos syndromes in 2017, as they relate to primary care. It offers a comprehensive guide to approaching the management of people who have EDS in a primary care setting, as well as indications for onward referral.”

First EDS toolkit launched for GPs