Hello Durango430,
Welcome to The Pain Community (TPC). We do wish we were meeting under different circumstances. We have known many who suffer with the Trigeminal Neuralgia and we are so sorry to read your post and how this came to be.
We are committed to providing you with the tools, resources, support and coaching you need to be your own best advocate on the pain journey you are traveling.
Here on our website we have a section all about advocacy and we will start there; https://paincommunity.org/advocacy/.
Read the advocacy section and then come back to this topic and we can take the advocacy skills that you will learn and help you personalize the skills for your needs.
In the meantime if you would like to talk to others who are on this journey with pain, we have a couple different options. First being these discussion forums, we also offer live hosted chats, Monday, Wednesday and Friday here on the website in the chat room at 11:00 AM ET.
We offer support calls every Tuesday and you can read more about them and see the schedule here at this link; https://paincommunity.org/tpc-outreach-support-conference-calls/
If you would like to also interact with us through email you can contact us at; outreach@paincommunity.org
Take care,
TPC Yaya
TPC Community Moderator
“The views or opinion(s) contained herein do not necessarily represent those of The Pain Community.”