[Ray Ray]

I am just so tired of being in pain 24/7 there is just no rest , so tired … and helpless living in South Africa is a death sentence if you think you will find a Doctor or hospital or clinic that gives a shit good luck with that I rather just die at home then in some dirty shitty hospital , were no one cares and no I am not having a pity party simply stating facts hoping some one could here and make a difference anyone in this country that is sick will tell you the same thing

[Ray Ray]

Good Day All ,

I am having hard time with my feet , they are burning like crazy , I am unable to wear shoes or even sandals , the bottom of my feet burns like crazy , and even a night my feet can not touch each other at all, I sleep with pillows between my knees to separate my legs and feet from touching each other , And they are swollen I can see where my ankles start or stop its just round. I tried doing some research and there is a lot of things that can cause this, but what I am thinking is nerve damage, I know the Ankylosing Spondilytis attack your nerves , But i do not have medical Aid and can not go to hospital because I am unable to stand at all my for 2 seconds before I start feeling unconformable ,I mean I can not even stand in the Que at our local KFC to get lunch , I am worried I might end up in a wheel chair as I dont have the money to see specialist and the still pay for treatment it is concerning I dont know what to do , but funny enough when I am walking I do not feel the pain only when I stop and stand ,

So what role the A.S and Fibro are playing I dont know , I cant afford any medications except for the Morphine Syrup so I am not under any real treatment either so i dont know what to do .

If anyone has any suggestions I would appreciated it , anything is better than nothing.

[Ray Ray]

Thank you I appreciate it. I will definitely consider what you are saying I must admit my exercise is not what it should be. I just hate all these medications I can’t help but thank no sometimes the damage they doing but I guess its the lesser of two evils.
Best regards thank you for the help I’m still learning to deal with it so I appreciate ur input

[Ray Ray]

Hi

Thank you for your response , it is really nice to speak to someone with A.S it is not a common thing so finding some one else is always a blessing for me.

My Doctor is advising the same, if i may ask how long have you been living with A.S , what medications do you feel have helped the most.

And the flair ups how do you keep them under control, I am struggling with that , the pain is always a given just the level that differs from day to day, my biggest struggle is the flair ups.
But it is a bit confusing because I have been diagnosed with Fibromaligia as well, so I dont really know when what is acting up only I can feel the pain is building and building then it just hits me out of nowhere .

I have been self injecting with Voltaren some times it helps but not always, any tried and tested advise you can give me .

[Ray Ray]

Hi

I am sorry to hear about your pain 6 years is a long time, without getting a proper diagnoses.
Have you ever considered to have a look at Ankylosing Spondilytis. The symptoms sound the same as what I have, Have you considered oils such as CBD it makes a difference .

Do you feel better or worse after movement ? do you have any back pain or pain running down the back of your legs , this could be nerves I am just guessing , but being so persistent over the years may be just that, I also have Fibro and I know the pain from that is wide spread over your whole body and joints , do you experience any other areas that are also prone to pian, and when is your pain the worst after the day or when you get up in the mornings , is the pain consistent
or does your pain levels differ from day to day.
Trie to stay away from bread and foods that are counter active some foods really do trigger pain, but there are other foods that do actually assist with pain, maybe as suggested by other members really have a look at you diet, it can make a real difference, the trick is because Fibro is so wide spread it is 99% of the time the go to for Doctor’s if you do see a Doctor again maybe do not say anything about the fibro let him do his own tests play dumb like you do not know what is going on maybe this way you are able to get a fair diagnoses.
I use to not even be able to get out of bed, and if that was not bad enough I was so drugged up from all the medications that it made me so depressed as well, I switch to Morphine for pain only and started smoking weed it really made a difference I am now able to work I still have pain but It made it sort of manageable, I have been using this combination for many years nothing worked except the previous mentioned I have found that the Oils have suppressed my flair ups , no medications have been able to do that, I hope this will help you ,

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