Maggie Buckley

  • It happened again. So I stood and focused my weight onto my feet. Still, it won’t stop. So, I walk.

    Sometimes it happens overnight and I am catapulted out of bed, out of sleep, not waking until I’m sta […]

  • Meditation comes in many shapes and sizes. Some forms of meditation that are not labeled as traditional “meditation” like prayer, singing, writing, or just being present in a moment. Like that moment of looking into the eyes of a beloved pet as you stroke them gently and feel a solid connection of just the two of you for that moment in time.

  • Welcome Bobba and RichDee,

    We all have to try many things to find a combination of things that work and then jigger things around to find improvement.

    I encourage you to explore some of the old blogs to learn about things that others are doing. Sometimes, when I read the blogs, I learn that what I took for granted as wasting my time is actually…[Read more]

  • Thank you for the comment, Dre. Suspending judgment about the music choices of others is very important. I have a friend who listens to heavy metal music as a distraction from procedures. She is such a fan of the […]

  • Memories can evoke powerful emotions—from happy to horrifying—and they can alter one’s perceptions about “the way things are.” Memories are triggered by a host of factors such as scents, sights, sounds, and situa […]

  • If you’ve read my past blogs, you know how important music is to me. As a person with chronic pain, music has enriched my life and helped me get through many, many tough days. What you may not know, is that the c […]

  • All of us with chronic pain know that, in addition to causing physical discomfort, pain affects our memory and ability to concentrate. Memory problems can also be exacerbated by our medications. For example, n […]

  • My husband and I are committed to eating good whole foods for our health and well-being. But as a person with chronic pain and limited mobility, there are many days that I just don’t have the energy needed to c […]

  • Ever since I can remember, listening to music has always been a source of pleasure to me. But since my teen years, when I began to suffer chronic pain, music has become much more to me. It’s become powerful m […]

  • A few years ago I was feeling sorry for myself as I lay on the floor in the living room dealing with back spasms and a hip subluxation. I had been down in the dumps for weeks prior to this due to the recent […]

    • LOVE the form, easy to use electronically and portable. Nice job, Maggie!!

    • I love this…it is easy to pull everything together. I will be printing it off and replacing the note I have in my wallet and also giving my husband a copy. I will also print off a copy and put it in a sealed envelope and use a magnet to stick it to the front of my fridge. This is what I was told by EMT’s to do with my in-laws medical info when I was caring for them at their house. They told me that they look in the kitchen for any type of info like this, as that is where most folks keep it.
      On my cell phone under the “notes” section I have all of my important info listed. I also have under “contacts” two family members identified as “ICE” and there is also a note to look under “notes” on cell phone for important info. I do also wear a medic alert bracelet with my name and it says to see wallet card.

      Keep these great idea’s coming!


  • ThumbnailThe human body is one big chemistry experiment. There are many studies that look at how substances affect the human body in general and the brain in particular. Research is underway that seeks to find the ideal […]

  • ThumbnailNobody seems to be satisfied with their own hair’s attributes, always wishing that it was thicker, straighter, thinner, longer, wavier, darker, shorter, lighter, etc. I’ve gone through many phases in my lifetime […]

    • I love this story. For years I had my hair long and pulled back in a pony tail most of the time. It was easy to pull it back and go. If I needed to dress it up a bit, I could.
      I have had spiral perms a couple times. I kept my hair long but with the tight spiral curls that were easy to take care of, just wash it, throw some hair gel on my hands, scrunch the curls and go.

      A couple years ago my hair had grown down to my waist and it was becoming harder and harder to just wash it. Drying it took an hour. It was even becoming hard to brush it and put it up in a pony tail. I could not keep my arms up long enough to do any of these things in a timely manner.
      I got on my computer and started looking at shorter hair cuts. I searched for days, I was having a problem seeing myself with shorter hair. I finally came across one that was shoulder length and looked easy to maintain so off to the stylist I went with a picture to show them exactly what I wanted.

      I set down in the stylist chair and showed her the picture. She studied it for a moment and started by cutting the long hair that would be donated to Locks of Love or Pantene Beautiful Lengths.
      After the stylist did the straight cut for the donation, I almost cried. She started cutting to make the style I showed in the picture and stopped. She wanted to know if I had natural curly hair and I did as a child. She then ask me if I would trust her to give me a different cut then the picture, she said it would be easy to maintain and she was positive it would look great on me. At this point I was feeling regret at cutting it in the first place. I figured what did I have to lose, after all it would grow back, so I told her to do what she felt best.

      She turned me around where I could no longer see the mirror, she wanted to surprise me. She worked for what seemed like hours. When she finished I could tell that my hair was much shorter than the picture I had taken with me. It felt lighter and real short to me.

      When she turned me around and I saw what she had done, I cried….she thought the tears was because I hated the cut but I loved it…it was short but not too short and it was so curly. She then told me that once she cut off the long strands for donation that she noticed the ends wanting to curl. She said at that point I knew exactly what would look beautiful on you and she was right. I was amazed that I was wearing short hair and it looked good, felt good and would be so easy to take care of. A quick wash, a spritz of hair gel a scrunch here and there with my hands and I would be done. I could also dress it up if I needed to for special occasions.

      Lesson learned; sometimes the change we fear is exactly the change we need.


    • Oh yes! One less thing to worry about when trying to get up and out of the house. Yes, Noki4, a trusted stylist is definitely on any person with pain’s Pain Management Treatment Team. Sometimes, looking good and feeling good are so intertwined. Change is good. I also went from long hair (could sit on the ponytail) to short hair and loved how it looked and how it felt. Now I see the true me when I catch a glimpse of myself in the mirror.

  • ThumbnailOne of my mother’s core beliefs was that we all need to be “Kinder than Necessary.” This is based on the fact that most of us don’t know what stuff other people are dealing with; it doesn’t cost us anything to be […]

    • This is a wonderful reminder that it can be the little things that we do for others that have the biggest impact on the person(s) on the receiving end.

      It is that time of the year where stress can and does run high. Folks are running here and there to get shopping done and making all the goodies to share with family and friends.

      Take a moment to share kindness during this holiday season.

      Happy Holidays,

    • Thank you, I will add this pain reliever to my pts suggestions and of course to mine

  • travel-msI’m one of those people who was born with wanderlust thus I’m always daydreaming of the next travel adventure. Living with chronic pain due to Ehlers-Danlos syndrome has meant that many of these daydreams remain unfulfilled.

    Growing up, family vacations were long range driving adventures around the USA. Looking back I am able to appreciate the time and effort that went into preparing for these trips. The car was always set up with sleeping/napping space, food storage/serving areas, entertainments (games, books, music, tapes, etc) and lots of maps. We would stop often at highway rest stops, historic markers and tourist attractions. Lodging was a variety of camping, rental trailers/houses and motels. Everything was planned out to make sure that every family member was able to enjoy the journey.

    As a young adult, I dreamt of traveling to other countries and satisfied my wanderlust with road trips, camping trips and overnights at the beach. My traveling companions were in awe of the comforts I managed to bring along in my small allotment of packing space. I had been trained early on to see to my own comfort and contingencies. I had the pillow, extra blanket, spare batteries, ice packs and extra food that they coveted. I also had the first aid kit, bandages, arm sling and crutches while others were focused on bringing the wine, beer and fireworks. It worked out well for all involved.

    In my 30’s I began traveling by air frequently for work. At first it was awesome, amazing and magical. While working as a management consultant traveling by air 3 weeks a month visiting 2 or 3 cities per week my body began to suffer. Pain increased with every take off and landing. Doctors diagnosed spinal issues and I began wearing a soft cervical collar (before crescent shaped travel pillows became ubiquitous) on planes, trains and buses to mitigate upper limb neuropathy. Packing light became a passion.

    Having reconciled my independent, take charge nature with my body’s needs for support my travel habits have expanded to visit far flung family and friends. Thanks to my willingness to be forthcoming about physical limitations and assistance needs coupled with their patient generosity in providing support and comfort, I have been able to visit Sweden, Denmark, Ireland, United Kingdom and Italy this year. The more I ask for help, the less self conscious I am about disclosing my need for assistance.

    The most recent example was on an international flight. I accepted an offer of assistance from a male passenger and had several great conversations with him during the flight. I didn’t realize until later that he was a celebrity. We were too busy talking about packing lists, favorite destinations and music for me to notice.

    Another time this summer, while overseas, I was waiting for a friend to meet up with me at a train station and needed help getting my backpack off. I asked a woman nearby to help me. We had a great conversation about art and research—it turned out that she works in a research lab and sees beautiful images through the microscope that remind her of famous artists/artworks.

    It turns out people really do like to help other people and I’ve met some amazing people in this way. I have learned so much more.

    Download Free Medical Travel Tool

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