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qualia replied to the topic Non-medication Interventions for Breakthrough Pain in the forum General Discussions on Pain 9 years, 3 months ago
Chronic Pain is the only malady where patients are encouraged NOT to take their meds, regardless of the dangerous consequences during breakthrough like change in pain for the worse. seizure, stroke, heart attack etc. The last time I hit a 10 (and by every definition out there I hit a medical 10) I made my right trigeminal nerve worse and now I have chronic tearing in my right eye and it has been tearing and puffy for months and it is horrible. And I was IN HOSPITAL BEGGING for medicine when this happened, but they refused to give me anything besides things I can’t take, so when I said no to the topomax and lyrica they said I was “refusing treatment” and “non compliant”, which I wasn’t, I was trying to avoid paradoxiacal reaction and horrible side effects. It’s like there is a fatwa on properly treating breakthrough pain these days, it’s torture, unethical and nonsense.
It makes me so sad to hear when people are “tortured” especially while in the hospital. Folks need to demand to see the patient advocate or the hospital administrator when this happens. Family & friends can play a key role by playing watch dog and reporting on the behalf of those in pain as it is close to impossible to advocate for yourself when your in so much pain.