I just found this site and immediately signed up. Have had three different surgeries for typical trigeminal neuralgia with the last resulting in anethesia delorosa.
I believe my team of doctors are doing what they can but it is such a rare condition. The pain is unbearable. I am almost at the end.
If anyone here is going through the same condition and is fighting the pain please let me know I am not alone.
Thank you,
Chrys