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Dear Micke :
Thank you so much for your opinion and information. I feel happy with your post and feel relieved with your comment that “it does not sound far fetched either.” I have sent out my story to many institutions including American Pain Society, but their response was no reply or stating reason of objection to circulate my story; their bylaw that prohibits circulation of emails to their members with private cause.
I have used lidocaine spray (I sprayed not instilled, though), but to my regret it only aggravated the pain. I think lidocaine was just an irritation material for me at the time. However, it was one and half a years ago so I don’t know how it will work now if I try again.
Cold temperature is also problem. When I am out in cold temperature the pain aggravates. Cold water, too. But, doctors said my case is not CRPS, just similar but very unique anyway.
I will keep sending out emails to related institutions (including places you suggesed) hoping that the person at the info desk decides to circulate my story to their members despite the bylaws, which I believe is not an easy job for him or her. In fact, I wish I can find insiders of such institutions who are willing to help me. For example, someone who are the members of such insitutions who can dispatch my case to their colleagues, which is more realistic way to get it through.
I was deeply moved by your concern and information. May I keep in touch with you?
Shinho Bae in need.