Blog
Hide and Watch: How I Learned to Approach Fear
by Cindy Leyland, Director of Affiliate Relations, The Pain Community Fifty years ago this winter, I spent a month at Children’s Mercy Hospital in Kansas City. I had lived with severe asthma 11 of the 12 years of my life. Earlier in my life, suspecting a heart issue,...
Please Read This: If you or a loved one live with chronic illness, like persistent pain, and receive SSDI or SSI for support, please read this.
Americans who are unable to work due to physical or mental impairments may be eligible for one of two kinds of benefits: Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI). SSDI: for people who have worked at least 10 years SSI: for...
Only the Scar Remains: A Surgical Pain Experience
Facing surgery is daunting for anyone. What may be considered simple by some is nerve racking none the less. As a new experience, an operation comes with fears of both the known and the unknown. As a nurse dedicated to pain management, I found that my expectations of...
Stay Connected
Feeling alone, sad, and lost without a sense of direction is not an unfamiliar experience for anyone. These feelings (even when surrounded by family, friends, co-workers and others) are not uncommon when living with chronic disease and persistent pain. They can occur...
Opioid Impact Series — A Caregiver’s Plea: Stop the Madness!
Submitted by a Member of The Pain Community. Since the CDC issued the opioid guidelines back in 2016, they have not only done extreme damage to the chronic pain and chronic illness communities, they have made being a caregiver to my loved one so much harder. What has...
Opioid Impact Series: I Am So Tired – Stop the Madness!
Written by TPC Community Member It is now nearing 30 years since this pain journey started for me. Seems as though that was a lifetime ago. My pain started out to be manageable and daily life went on. As time marched on, it became a little harder to manage. With the...
Chronic Pain in EDS Study – Relief of Chronic Musculoskeletal Pain in EDS
This questionnaire will be collecting data for the study on the relief of chronic musculoskeletal pain in patients diagnosed with Ehlers-Danlos Syndrome (EDS). It aims to find out what treatments, actions and coping mechanisms can relieve the chronic musculoskeletal...
What’s All The Fuss About Kratom?
TPC feels one of our responsibilities to the pain community is to keep up to date on what is being used for pain relief and provide the best information available.Learning that there are ongoing conversations on social media from people living with pain who are...
Opioid Impact Series: Something Happened That Day!
A Personal Experience of a TPC Community Member My daughter had an accident and broke her ankle at her home. The day after she had surgery to repair the break, she was having some serious issues so I drove her to the emergency room. It was a warm day and while she was...
Opioid Impact Series: Healthcare Providers’ Dilemma
The campaign to stop the “Opioid Epidemic” reaches into every aspect of healthcare, from the exam room to the hospitals, pharmacies and homes of people who live with pain every day. In reaction to this crisis, the Centers for Disease Control (CDC) published their...