Welcome!

This topic contains 16 replies, has 12 voices, and was last updated by  TPC_YaYa 9 months, 1 week ago.

  • Author
    Posts
  • #4197

    Welcome to The Pain Community (TPC) – your home for support, connection and purpose. Please introduce yourself.

  • #4337

    jkpmom
    Participant

    Thanks for all your hard work!!

  • #4346

    cricket183
    Member

    Site looks great!  Looking forward to chats…is there a schedule yet?

     

  • #4350

    Hi Cricket,

    Welcome! We’re still working out some kinks and hope to have a schedule soon. We’re a work in progress and so glad to see folks showing up.

  • #7463

    FredFriend
    Participant

    I love some of the new screen names. Welcome @funkytown! “Real” membership here at the Pain Community is free and I’m looking forward to learning more about your pain journey and coping tips. My favorite coping mechanism is distraction; games, movies, shiny things, rainbows… I’m easily distracted. My dog, Fred, is also easily distracted like that dog in the movie “UP”… “Squirrel!”

  • #35991

    Sudsysuzy
    Participant

    Decided it was high time to climb out of my little box and join in the discussion about pain. I am not looking for anything in particular – but I am encouraged that I might find insight into this wonderful life of chronic pain.

  • #36114

    TPC_YaYa
    Moderator

    Hi Sudsysuzy,

    Welcome to the TPC family and community. It helps to have others to talk to you, we know that we are not alone on the journey.

    We have hosted chats on Monday-Wednesday-Friday at 11am ET and on Thursday night at 7:30pm ET. Lots of great conversation and support.

    If I can help you with anything please let me know.

    TPC_YaYa
    TPC Community Moderator
    “The views or opinion(s) contained herein do not necessarily represent those of The Pain Community.”

  • #36320

    Noki4
    Participant

    Hi Sudsysuzy,

    Nice to see you and meet you. I have found that by interacting here in the forums, on the chats and on the monthly support calls that it helps me a lot. It gives me the chance to share my pain journey with others in hopes of helping them and they help me.
    Hope to see you around more often
    Take care
    Noki4

  • #45055

    William
    Participant

    I am new to this site. Some of you may find my story interesting. Stories, really. I was titrated to 1,000(one thousand) mgs. of morphine a day many years ago. I had an end over end motorcycle accident in 1969, hit by a car in 1988 and spent 21/2 months in rehab pain hospital. I now have neuropathy, and a shattered left shoulder, fixed well, but painful much at times. Back and neuropathy are constant. As you may know, the DEA is now practicing medicine; they came to Colorado because they don’t like that we legalized pot ( which I do not smoke now-haven’t for years). My pain doc went back to Europe, and so I went to my GP, a good doctor, and a good man. They sent a professional liar into his office, illegally seeking drugs, and arrested him, last summer, at the start of the prescription pain med battle in Nixons’ drug war, a baby born dead. I withdrew hard, no taper, no medical assistance. It nearly killed me. I was told by more than one medical professional that I would be uncomfortable for a few days; every one of them would have died, I strongly suspect.Re: Nixons’ drug war, and the current opioid battle. Look up the stats; more people have been and are dying from OTC meds, aspirin, Tylenol, and Ibuprofen, and prescription NSAIDS than opioid medication. Anyway, looking forward to figuring out this site, and writing about all of my experience over the past year. I am a retired Juvenile Corrections Specialist, Eagle Scout, and writer wannabe. I don’t know how to use mindware and computers well, so please bear with me. Looking forward

  • #45083

    EmilySpeaks30
    Participant

    Hi everyone! I’m new to this community! I have lived with chronic pain for 6 years from a severe back injury that compressed my lumbar spine and caused immediate, permanent damage. I had a spinal fusion for my “worst level”-L5/S1- in Feb 2015, tried to go back to work, developed NEW pain/issues, and had to stop working. When I stopped working, I lost the medical career that I worked toward for 8 years and it sent me into a VERY deep depression. I have been in the process of emotional/mental and physical rehabilitation since November 2015. I have definitely been through the worst (I hope!!) at this point and I have come out stronger on the other side, so I am sharing my story to try to help others who are still in the trenches!

  • #45107

    ksouth21
    Participant

    Emily,
    I also just joined today. I’m grateful to find a supportive community and folks who can relate to the chronic pain issues I deal with on a daily basis.
    You and I have had similar experiences, specifically, I too was forced to stop working in my chosen professional field. I worked 30 years as a certified sign language interpreter. I loved my job, I worked in various settings in the community as well as teamed with colleagues interpreting classes each semester at our local community college.
    The isolation was the hardest for me. Like you, I became very very depressed ( I have suffered from Depression and been on meds for 15 years or so). This all happened two years ago and since then my depression has been very difficult to treat.
    Anyway, I can relate to your story. I’m sure many others here in this community can relate as well.
    I have some specific questions for this community regarding research resources I can obtain to help my family understand my situation
    I have been taking Norco for about 7 years for persistent on going neck pain, neuropathy, and low back pain. I’ve had 4 neck surgeries, all fusions ( the most recent one in Jsnuary 2016)
    I’m now fused at every cervical level.
    The psin meds literally provide functionality for me and a reasonable quality of life. Of course, they don’t completely get rid of the psin, but it keeps it manageable most days.
    I have more to share and would like community feedback, but don’t want to make my initial post too long….. ( too late you say? Smile)
    My username is ksouth21
    Look forward to sharing and learning from you all

  • #49396

    Noki4
    Participant

    Hello William, EmilySpeaks and KSouth,

    I am sorry it has taken me so long to welcome you to the community. I have been dealing with my pain issues, you know how it is.

    I want to welcome you and share with you that the support I have gotten here at The Pain Community is wonderful. The discussion boards are not real active right now but their Facebook page is, here is the link; https://www.facebook.com/paincommunity/

    Also they have hosted live chats on Monday-Wednesday-Friday at 11am ET and on Thursday nights at 7:30pm ET.

    They also have these wonderful phone support calls. The calls are 4 times a month always on Tuesday and the time varies every other week. The next call is on Tuesday, August 16th at 1:00pm. You do not have to register and there is no charge to join the calls and the calls are open discussion so everyone gets to share if they like. The call in info is,
    Call in number: 712-775-7031 Passcode: 491-268-096 and press the # key. I love these calls, so much support and they are also fun. The folks who call in are so helpful and supportive and it feels more like old friends chatting on the phone. I do hope you will give the calls and chats a try.

    This link tells you more about the calls. http://paincommunity.org/tpc-outreach-support-conference-calls/

    Take care,

    Noki4

  • #51036

    Snowtgrr
    Participant

    Hi there,

    I am wondering how to change the picture? I looked around the settings and couldn’t find where it is. I have several pictures that I love to use.

    If anyone could let me know I’d appreciate.

    Snow

  • #51151

    TPC_YaYa
    Moderator

    Hello Snow,

    Welcome to TPC. You can change your profile picture by looking at the top of the window for the green bar. You will see Profile – Settings – Notifications – Log out.

    Clink on the profile and it takes you to your personal profile and you can change your picture.

    Here are two photo’s that I hope will help. If I can be of more help or answer any questions please let me know.

    TPC_YaYa
    TPC Community Moderator

    “The views or opinion(s) contained herein do not necessarily represent those of The Pain Community.”

    TPC Help Photo

    TPC Help Photo

  • #55716

    Sarah4108
    Participant

    Hello to everyone on this website. I’might not looking for any kind of treatment, just outside info that may help me with my ongoing recovery. My doctors give medicines and therapies and i’m looking for other resources that may help me. I have 4 herniated disks in my back, along with one in my neck and all I get from them is , “it’seems not time for surgery.” 2 moved out further, and not by my spinal cord and still no answers. I got hit by a train 10 years ago this new years and it’seems like i’m not getting anywhere. I also have a traumatic brain injury and was wonderingoing if stretches and exercising can make things worse? Anyone have that rusk also? I have degenerative disk disease, arthritis of a 50-60 year old when I’m only 26.
    Anyway, hello to all and please let me know if any of you have many risks to get better and find a way to keep going. I like to hear from people who also share some of the same problems because it isn’t just from a doctor who gives a medicine and calls things good.

  • #56480

    Noki4
    Participant

    Hi Sarah4108,

    Welcome to TPC. So sorry to hear of all the issues you are dealing with. I totally understand the degenerative disc issue. Mine started when I was 24 years old and I am now 52. It has been a long journey but I am still moving forward.
    I feel staying positive or has positive as possible helps with the recovery and daily living with pain.

    TPC has some awesome resources here on the website and they also have the morning chats and the support calls. Try all of them because you just never know when and where the answer to your questions or concerns will be there.

    Take care
    Noki4

  • #56481

    TPC_YaYa
    Moderator

    Hello Sarah4108,

    It is nice to meet you, welcome to The Pain Community. I see that Noki4 mentioned the other resources that we have here on the website.

    Our chats are at 11am ET on Monday – Wednesday – Friday and at 7:30pm ET on Thursday night.

    The outreach support conference calls are 4 times a month and they are on Tuesdays.
    The link below has more information regarding the support calls. We will be having one tomorrow,
    November 15th at 1pm ET. You do not have to register, just call this number at the correct time.
    Call in number: 712-775-7031 Passcode: 491-268-096 and press the # key.

    If you have questions you can ask here or you can email, outreach@paincommunity.org

    If I can help you in anyway please let me know.

    TPC_YaYa
    TPC Community Moderator

    “The views or opinion(s) contained herein do not necessarily represent those of The Pain Community.”

    TPC Outreach Support Conference Calls

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